Dealing with a Spouse with a “Mild Cognitive Impairment”

Posted by tryingtimes10 @tryingtimes10, Dec 31, 2024

My husband was diagnosed with MCI in 2019. He is pretty independent, just forgetful of time, dates, location of places, anything electronic & events from our life together (we’ve been married 52 years). It’s all just getting to me. I find myself wanting to be alone so I’m not continuously reminded of these changes. Because my friends/family are out of state, working, or involved with their own families, I really have no one to talk to so I’m seeing a therapist twice a week to deal with the sadness, anger, grief I have over his condition. I just wonder if other women find themselves in this position & how they are dealing with it.

Interested in more discussions like this? Go to the Caregivers: Dementia Support Group.

Things sure can get difficult, and then when we can sit back, and breathe . . . It’s something else. Help us, Lord !

REPLY

it is hard when my husband was diagnosed with MCI I was relieved that it wasn't dementia, I have a habit of watching him to see what comes next. He does fine but has short term memory. I have decided to take one day at a time and enjoy him at the moment, He is getting over pneumonia W as in the hosp three days ,Now he is weak. He helps around the kitchen at supper time. He also has COPD so he is short of breath. But he acts normal Just count your blessing and pray to God to help you to keep going It may only get worse so don't stress out now Keep your strength for the days to come

REPLY

we have been married 61 years Have 14 granchildren- 22 great grandchildren - 5 great great grandchildren So we have a lot to live for. Most of them live 150 miles away

REPLY
Profile picture for inkyblb @inkyblb

Same happened with my husband. He got involved with three different scams and lost A LOT of money which has put us in a very difficult place financially. There was no convincing him he was being scammed. A year later he was diagnosed with Alzheimer’s. Looking back, this was the first sign that something was seriously wrong - an out-of-character breakdown in judgement.
The dementia red flags should go up if scams are occurring. Hopefully this will help someone else to recognize early signs!

Jump to this post

@inkyblb, welcome. I'm sorry that the scam has left you with financial constraints as you care for your husband. As @kmliste said, such out of character behaviors are often the first signs, but usually only in hindsight. As they say, hindsight is 20/20. These signs often creep up and are dealt with as part of normal life...until it doesn't.

What signs or situation led to your husband getting a diagnosis? How are you doing now?

REPLY

Hindsight - yes!

At the same time we were seeing signs of memory issues. Also trouble with screens, which he had always been on top of and the person we would go to with questions. Keeping track of appointments was becoming more difficult for him. Unfortunately, it took us a long time to get an appointment with a neurologist, like 7 months. He has started on Donepezil.

I am really overwhelmed. Trying to take one day at a time, but not easy for me. I'm researching a lot, and that is overwhelming too. Hard to not have any idea how this will progress and what that will mean for him, me and our family.

Interesting fact...his brother was diagnosed two years ago. Two brothers, both played football through college. I have to wonder about that.

Thanks for reaching out!

REPLY
Profile picture for Becky, Volunteer Mentor @becsbuddy

Hi, @tryingtimes10 Welcome to Mayo Clinic Connect! While we wait for members to get involved in this discussion, I thought you might find this earlier discussion helpful.
https://connect.mayoclinic.org/discussion/caregiver-for-spouse-with-mci/
You are in a very difficult position but I respect your thoughts and hope you find some help from your therapist. You are not alone in caring for a spouse with MCI. It’s just very difficult.

Jump to this post

@becsbuddy
Good Morning -
I just joined this group - I've been reading a digging into MCI on my own and have finally scheduled a therapist appointment for myself to figure out how to proceed with loving life with my husband. My question is: how to you approach your spouse about seeing many signs of MCI and that it is a problem in the marriage ????
@kordahl

REPLY
Profile picture for kordahl @kordahl

@becsbuddy
Good Morning -
I just joined this group - I've been reading a digging into MCI on my own and have finally scheduled a therapist appointment for myself to figure out how to proceed with loving life with my husband. My question is: how to you approach your spouse about seeing many signs of MCI and that it is a problem in the marriage ????
@kordahl

Jump to this post

@kordahl I guess fortunately for me, my wife began complaining of memory lapses long before I could sense anything myself (and I am a retired physician). So I went with her to our primary care physician who also could not detect a problem with the (limited value) MMSE (mini mental status exam). But he referred her to a neuropsychologist who performed formal testing which revealed "MCI". That was 10 years ago. Her progression has been slow but she seems to have lost the awareness that she has significant short term memory loss. She knows "something" is wrong and that it will "only get worse", but isn't very insightful otherwise.

If your husband is unaware of any cognitive impairment and is unwilling to undergo testing, that in itself is telling. A private conversation (or message) with his physician might be useful.

REPLY
Profile picture for beverlyhaynes55 @beverlyhaynes55

My husband has had memory problems a good portion of our marriage. We have been married 50+ years. He has had at least 2 concussions from automobile accidents. About 10 years ago he was diagnosed with vascular dementia, following some TIA’s. He was begun on Aricept and Namenda. I couldn’t really see any improvement. He stopped taking the meds of his own accord. He has now begun using words that aren’t real words, having blank stare episodes, and forgetting lots of things. He saw another neurologist who said he has mild cognitive impairment and restarted the two meds. I might see some improvement but he still has these episodes of confusion. He never talks to me and sits in his recliner most of the day doing nothing. If I try to engage him in conversation, he acts like a toddler, pouts, and goes to bed. I get the silent treatment for several days. I still work 12 hour shifts at the hospital as a nurse. I work PRN, but sometimes those hours add up to 3 days a week. I’m trying to balance work and home alone without help. He gets very mean if I ask him to help out with the chores. My sister keeps telling me I should retire (I’m almost 70) but work is my only saving grace. I have no friends outside of work and church and I pretty much keep everything bottled up inside. I’d like to do some traveling but he’s no fun to be with on a trip, so I just go alone with a travel group. There has to be more to life than this.

Jump to this post

@beverlyhaynes55 Hi Beverly - I am new to this group but the stories sound so like me and my husband! Your post especially resonated with me! I am almost 72 and still working full time as an accountant. All my younger siblings are retired, travel and vacation, etc. I am very jealous sometimes. But working is the one thing that keeps me sane. My husband does not have an "official" diagnosis but his forgetfulness, confusion, and mood swings certainly sound like a cognitive disorder beyond just normal aging. My husband has been medically retired for over 20 years, mostly due to mobility issues. He has had a hip and a knee replaced in the last 18 months, which has helped his mobility, but he has other health issues that are a hinderance to traveling. His mental decline is something I have only noticed in the past couple of years, but it is definitely getting worse. I have to admit to feeling like "Cinderella" sometimes, always waiting on him. It's not so bad when he is in a happy mood, but if something sets him off to being onery it is almost unbearable. I am relieved to know I am not alone in this situation.

REPLY
Profile picture for kordahl @kordahl

@becsbuddy
Good Morning -
I just joined this group - I've been reading a digging into MCI on my own and have finally scheduled a therapist appointment for myself to figure out how to proceed with loving life with my husband. My question is: how to you approach your spouse about seeing many signs of MCI and that it is a problem in the marriage ????
@kordahl

Jump to this post

@kordahl
Perhaps your husband is unable to process his issues because he's cognitively impaired. Some folks have no awareness that they have challenges, it's called anosognosia (you can do a search on this site for more info).
Do you want to start dating and documenting what behaviors are off his normal? That way you can share with medical professionals when they asked what's up and you have 15 minutes, tops.
All the best to you. 🌺

REPLY
Please sign in or register to post a reply.