Diagnosed with Meningioma

The one I had removed, I was told 1/16th of an inch from my optic nerve was, "dural based lesion along the left middle cranial fossa abutting the left cavernous sinus and left foramen rotundum." Whatever that means. I just know 2 neuro doctors told me not operable given the location but it was removed successfully. MRI follow ups show still not there. BUT, I am doing active surveillance on an .8 centimeter "enhancing lesion (meningioma) along the left aspect of the posterior superior sagittal sinus without evidence of superior sagittal sinus invasion." A follow up scan calls it out as "left posterior parasagittal." I also have a 6 centimeter one called out as "small right posterior falcine meningioma." They have not grown in the past year and I've already been told that if they do I would have radiation and not another craniotomy. So to answer your question, I think mine is also parasagittal but not invaded the superior sagittal sinus, and I sure hope it never does.

dchrzano: .6 centimeter falcine meningioma NOT 6 centimeters (typo error)

I’m reading from the report It says left frontal subcentimeter extra axial.
I have ask repeated where exactly it is and the answer is ask the neurologist but he won’t see the patients only get to see nurse practitioners.

rh61: It sounds to me like your insurance is an HMO. You're more apt to be seen by nurse practitioners rather than the doctor. That would also explain why you were told to wait a year before getting your repeat scan instead of 6 months. You/we need to be very proactive in advocating for the best healthcare available to us.

Actually it’s a PPO but I’m sure it’s the doctor. He charges the same amount no matter who I see I’m not going back I’m done with him. I want someone that specializes in this.

@carol1965 I got a second opion about getting my meningioma removed surgically or zapped with radiation. The second opinion pointed out a biopsy can be done if removed surgically, but with radiation, no biopsy is possible. Hope this helps. Hugs!

@rh61 When I was making an appointment, I declined appointment with NP, insisting on seeing a neurosurgeon. If you call your insurance company, they can tell you what neurosurgeon is in-network.

@ladytri Not really. A needle biopsy is done prior to treatment, if needed. Surgery should not be needed just to have a biopsy. 90% of meningiomas are benign and radiation can be done to kill cancerous meningiomas in some cases. I wouldn’t choose surgery over radiation just to get a biopsy and don’t believe a good neurologist would either. I had Gammaknife radiation 3 years ago on a 4cm tumor and it’s dead and shrinking. No after effects other than being on anti-seizure meds.

I have a small meningioma near the left optic canal and a choice between 30 fractionated radiation treatments and Keyhole surgery. At this time, I leaning toward radiation.

@joetex no one mentioned "biopsy" to me. Now I'm totally confused and angry. 😠 I have a pre op appointment this week. Will be sure to question this. Thanks @joetex I'll let everyone know what I find out