Joint pain and swelling after doxycyclene, Lyme disease
I had a tick bite in June 2021, rash appeared, and I was treated with doxycyclene. This winter my joints were painful and began swelling. Tested positive and doxycyclene again. Completed 28 days about 2 wks ago and the pain is creeping back. Any suggestions appreciated.
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@heatherdawn1979 I would suggest that since has been going on 2 years now, that you go back to your doctor and for further check up. And you might also ask for a referral to a Lyme disease specialist. This organization may be able to help you.
https://www.ilads.org/
Have you been worked up for any other diseases?
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3 ReactionsIt's always miserable to find out that what we though was cured was really just hiding! You might find this ongoing Mayo Connect discussion about Lyme disease to be helpful. Lori (@loribmt) has provided some helpful resources.
https://connect.mayoclinic.org/discussion/lyme-disease-thank-you-all/
Also helpful is this group dedicated to helping people deal with the ongoing symptoms of chronic Lyme disease.
https://www.lymedisease.org/lyme-basics/lyme-disease/chronic-lyme-disease/
Good luck with your continued treatment. It took my niece several years to completely recover, and though she has been symptom free for a while now, she is always watchful in case the symptoms come back.
Sue
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2 ReactionsThank you Sue. I appreciate the info.
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1 ReactionI can't get in to see a rheumatologist from the metro north until November. I live in central Mn. I will check the link you sent. Thank you.
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1 Reaction@becsbuddy Doxy and Amox failed me. Cefuroxime worked.
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1 Reaction@sherikm1 I’m so happy to hear from you and to know that you got the problem solved! For now, that is. If your symptoms reappear, call the same doctor for a physical and possibly more medication. Lyme disease is just like autoimmune disease—hard to diagnose and hard to treat.
Did you see an infectious disease doctor? I won’t ask any more questions! I’m just glad that you’re better and that you were nice enough to let me know!
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4 ReactionsI have seen two family doctors and orthopedics does my knee injections once every 3 months for now. I used Ceferoxime 500mg for two weeks. Loritadine 10mg for chest pain and breathing problems.
oral Biaxin for a couple of years daily, IV Rocephin for 8 months daily. Chronic mono arthritis in the knee, 10 fluid draws and injections in a 12 month period, surgery for a partial synovectomy. None of this helped except for the IV Rocephin. There is no cure but there is a remission of symptoms.
I got treated for long term Lyme over 30 years ago. Doxy and Probenicid for over a year. My doctor was a Lyme expert at that time when most doctors did not believe in long term Lyme. His daughter caught Lyme so he was motivated and was a Lyme warrior.
On the combo of drugs, I would get a Herxheimer reaction daily from 5pm to 9pm (aches, pain, fever for hours then okay until the next day). We just kept at the bugs until no Herx anymore. Over a year. No problems since - at least that I could 100% say was Lyme. I had intermittent tachycardia for 30 years, several bell’s palsies leaving me with a permanent partial paralysis, but it wasn’t until the arthritis, pain and swelling that wasn’t arthritis that led me to Lyme.
I had a tick bite that was diagnosed as RMSF long before they even knew about Lyme. I think it was pregnancy that finally let the Lyme bloom to the extent it did. Since I was a child when I was first bitten, I don’t know what they treated me with. If it wasn’t the ridiculousness that I had RMSF with no mountains around, I probably would not have remembered the odd diagnosis nor the time I got a “rock” stuck in my eyebrow after sleeping outside on blankets. I still have a scar where they dug it out.
Do you get a Herx reaction? If so, keep treating.
I also developed an aversion and nauseousness to red meat around that time and have avoided red meat for 55 years.
If you get one tick disease, there is a good possibility you have more than one tick disease.