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Living with Parkinson's Disease - Meet others & come say hi
Welcome to the Parkinson's Disease group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with Parkinson's or caring for someone with Parkinson's. Let's learn from each other and share stories about living well with Parkinson's, coping with the bumps and offering tips.
Chances are you'll to be greeted by fellow member and volunteer patient Mentor, Teresa (@hopeful33250), when you post to this group.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let's chat. Why not start by introducing yourself?
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Hello @sillyblone,
I appreciate your willingness to post with our new member, @andrew95!
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2 Reactions@hopeful33250 No problem at all!
I’m my husband’s caregiver as he lives with PSP. Any helpful hints on dealing with my frustration with him?
Hi @jsbaden1 - welcome to Mayo Clinic Connect. That is understandable you might have frustrations as your husband's disease progresses. Where you will find a lot of others in similar caregiving situations on Connect is in the Caregivers group, which you might check out https://connect.mayoclinic.org/group/caregivers/.
Hi, my name is Max, 76, from Austin Texas, Today is Aug 25, 2026; I was diagnosed yesterday. Neurologist told me I have a good 20 years or so ahead of me until it gets bad. Likely, I will spend the next couple of weeks trying to get accustomed to the diagnosis. At least I am already on Carbidopa/Levodopa for my several year-old tremors. Perhaps I may have met some of you on the Prostrate Cancer Support Group. Cheers!
@jsbaden1
I found that getting my spouse to do something he enjoys and then ask questions about how he is feeling and what his thoughts are! It usually opened the door to a conversation about him and I would redirect if necessary! It is hard to guess what the problem is! To the person going through a major illness everything tends to be overwhelming! When I concentrate on his feelings he would talk about his fears and that he hoped that I would always love him! Well the good thing I will always love him and miss him as well! He would say to me “I’m getting worse and I know it “. I found redirecting him about a time where we planned a trip each year for our Anniversary! Each year he would do it and the next year I would! I would ask him a special place he remembered! He totally did a turn around when he was sad or really needed to share a feelings with me! I don’t know if that would work out.. but usually it did! Near the end of his life he had so many things going wrong with his health and he thought he was a burden! Again I would redirect with a game like dominos, card games and maybe his favorite type of show! “Westerns “. He would light up and he forget he was sick and I had my spouse back! The mind is such an intricate part of our bodies! But letting it be dormant is worse! Stimulation and conversation worked most of the time! Hugs to you and yours