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It seems like everytime I see a medical practitioner...

Posted by pataystyl @pataystyl, May 17 4:20pm

It seems like everytime I visit medical practitioner......they get overwhelmed. ... Has anyone experienced this? Recently, I ask for a physicians statement for disability and they scattered like cats... LOL..

No one wants to deal with it... .. So over the medical community at this point.

In addition, I struggle getting to dr appoints due to my CFS and poor sleep.. I find that the medical establishment, businesses etc.. have no grace for people with chronic illness or disabilities... They get easily annoyed. Whats crazy is I rarely miss Dr appointments if any. But the one time I do they are so upset. You would think they would understand....Anyone else experience this?

But I am doing better after 6 years... Seeing a chronic pain therapist and a somatic therapist has helped a great deal.. Thanks for reading.. Sending support and good energy to all of you.

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

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truwomandi | @truwomandi | 1 day ago
In reply to @juniper10 "@truwomandi LC is not rare; many millions in the US suffer from it. Don't let some..." + (show)
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@truwomandi LC is not rare; many millions in the US suffer from it. Don't let some doctor push the bs.

Recent studies estimate that roughly one in six adults (about 15 to 18 million people) infected with SARS-CoV-2 in the U.S. develop long COVID. General population surveys by public health agencies show that roughly 5% to 7.6% of U.S. adults live with long COVID at any given time.

Key Estimates and Findings

Infection Rate: A large-scale multi-hospital study published in JAMA Network Open found that 16.3% of COVID-19 patients developed long COVID symptoms, with nearly 90% going on to experience new chronic health problems.

Population Prevalence: Public health tracking indicates that about 5% to 8% of all U.S. adults report currently experiencing or having experienced long COVID.

Underdiagnosis: Researchers note that standard diagnostic medical billing codes drastically undercount actual cases. Many patients receive treatment for specific chronic conditions (like metabolic, cardiovascular, or neurological issues) without being formally labeled with long COVID.

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@juniper10 Thank you, I copied this to my PCP

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juniper10 | @juniper10 | 1 day ago

I'm so sorry no one will help. What state are you in? There must be someone, a social worker, librarian, or volunteer at a senior center, etc, that can help.

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onpainsufferer | @onpainsufferer | 14 hours ago
In reply to @truwomandi "@truwomandi MORE I had a video chat with the doctor today, It looks like he was..." + (show)
Profile picture for truwomandi @truwomandi

@truwomandi MORE I had a video chat with the doctor today, It looks like he was talking with someone else grr I am going to write soon, He did say that long covid is very rare

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@truwomandi Sounds like a poorly informed doctor since it’s >400+ millions people globally and growing (roughly 5% of the population). Thats my beef with the US medical community. Long Covid is becoming an epidemic and it feels like 99% of the medical community is blind to it! The health of many of us deteriorates by the month, but the speed of clinical trials is glacial and insurance (medical and disability) doesn’t want to cover.

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