Heart Rhythm Conditions – Welcome to the group

Welcome to the Heart Rhythm Conditions group on Mayo Clinic Connect.
Did you know that the average heart beats 100,000 times a day? Millions of people live with heart rhythm problems (heart arrhythmias) which occur when the electrical impulses that coordinate heartbeats don't work properly. Let's connect with each other; we can share stories and learn about coping with the challenges, and living well with abnormal heart rhythms. I invite you to follow the group. Simply click the +FOLLOW icon on the group landing page.

I'm Kanaaz (@kanaazpereira), and I'm the moderator of this group. When you post to this group, chances are you'll also be greeted by volunteer patient Mentors and fellow members. Learn more about Moderators and Mentors on Connect.

Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.

Profile picture for gloaming @gloaming

@buddy135 You've done very nicely at 91 and with such an early damage to your mitral valve.

AF is surprisingly common as an arrhythmia, and it's more often found in people over the age of about 60 or so. It's not a lethal disorder....it won't kill you....and most cardiologists will only prescribe an anti-coagulant since the immediate and enduring risk is that of stroke. AF can cause clots to form in the left atrial appendage (LAA) and if they emerge and flow downstream, they can get lodged in trickly places and cause permanent damage. That can be in the heart's own vessels, the lungs, or in the brain.....stroke.

Some patients with AF are highly symptomatic. They live essentially miserable lives because of how it makes them feel when the AF is happening. Others live very comfortably and have no objectionable sensations. With monitoring, say every year, to determine hearth function and health, many live for decades just fine. Others progress to more advanced stages of AF and their hearts and their moods suffer. Those people would want to have asked for more aggressive treatment, but it may be too late. So the wisdom is to get treatment going as soon as possible to forestall that progression. For younger patients, or those reasonably expecting to live well another 4-10 years, catheter ablation is the gold standard of care. For those whose prospects of living well are diminished and falling, probably best to treat with medications and try to enjoy life that way, especially if they are largely asymptomatic.

This is a conversation you would have with your cardiologist, or perhaps on referral to an electrophysiologist (EP) who are heart rhythm specialists and 'electricians.'

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@gloaming what an enlightening reply thank you. Im73 yo man who was diagnosed 2 months ago with a flutter after an ER visit because of accelerated heart rate. I was prescribed AMI 200 mg day but last weekend it caused HR to drop too 30. EP discontinued AMI. This lasted for several hours. I’m awaiting an ablation but a few months away. I’m healthy otherwise I’m told. Is there an alternative to AMI. Also does heat or cold trigger a flutter episodes. Thank you

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Profile picture for stan52 @stan52

@gloaming what an enlightening reply thank you. Im73 yo man who was diagnosed 2 months ago with a flutter after an ER visit because of accelerated heart rate. I was prescribed AMI 200 mg day but last weekend it caused HR to drop too 30. EP discontinued AMI. This lasted for several hours. I’m awaiting an ablation but a few months away. I’m healthy otherwise I’m told. Is there an alternative to AMI. Also does heat or cold trigger a flutter episodes. Thank you

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@stan52 You are welcome!

Amiodarone is 'the big hammer', the big bully of all known and currently approved anti-arrhythmic drugs. It's so potent, unfortunately that doctors don't like to use it, or they use if as sparingly as possible to minimize potential risks to the patient. After all, each monitoring assessment isn't free either, and adds to the cost of keeping the patient healthy. Amiodarone requires frequent assessments, at least in the early days, to ensure the patient is doing appropriately and not developing unwanted side-effects. So, while it's a whopper of a drug, it's also effective...was on it myself for about eight weeks four years ago. Didn't want it, wasn't happy, but I was a LOT happier on it than off it due to my symptoms and horrifying ECG outputs when off it. You should not be on it so long, Deo volente.

I don't know enough about you, or about the career experience of the prescribing physician, to say there's a better fit for you among other anti-arrhythmic drugs (AADs). I would say the heavy majority of arrhythmia patients are on propafenone, flecainide, maybe Tikosyn or Sotalol...or even just on diltiazem which does a great job for some. Why amiodarone for you? Dunno, but if it's working and you are quite secure in that it won't be for long, maybe leave well enough alone? But the question is important, and the other person needs to answer it to your satisfactory understanding.

People swear by probably 60 known triggers, each person with the list they swear by, and they're all a bit different from one another. Some develop AF and stick their heads in a bowl of ice water, plunging, to break the arrhythmia. According to them, it works most of the time. Some try the Valsalva manoeuvre and it mostly works. Sometimes belching helps to relieve it. Some pace around their garden until it stops. Will heat set it off? Yes.............for some................sometimes. So will acid reflux, alcohol, some swear off all sources of caffeine, some find it's low levels of magnesium or potassium in their diets, getting upsetting news. As I wrote the check on our newly purchased Highlander three years ago, my heart started the thump 'n bump. So, stress, worry, anxiety (the gift that keeps on giving), a startling bang, waiting for that dreaded phone call....you name it, it's on someone's list.

BTW, many ablatees for AF soon find they are in AFL, so it's a common outfall from being catheterized for AF. Fortunately, that kind of flutter is easily treated, almost always with a second ablation. No, it's far from ideal, but if it does happen, it's the catheterization that must have set it off. Add that to the list.

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I was diagnosed with afib Jan/26 & didn’t even know I had it other than my BP machine telling me my heartbeat was irregular. Dr sent me for EKG and it indicated I was in afib while having the EKG & was put on blood thinners immediately then had an angiogram and it was confirmed again. I have NO symptoms and feel normal. I had a cardioversion this summer and it worked for a very short time (Dr.’s shocked me 2 times) then I fell back into afib again. I am wondering if an ablation would help?? Just lately I have been getting sore back muscles some days and was wondering if it is a side effect of the afib? Sounds silly asking but I’ve never had back issues before and wondering if they are connected.

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Profile picture for Zebra @californiazebra

@jenrev
That’s a funny story. 😂

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@californiazebra I have always appreciated doctors who bring humor to their treatment. This was the perfect message at that moment.

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Profile picture for dar49 @dar49

I was diagnosed with afib Jan/26 & didn’t even know I had it other than my BP machine telling me my heartbeat was irregular. Dr sent me for EKG and it indicated I was in afib while having the EKG & was put on blood thinners immediately then had an angiogram and it was confirmed again. I have NO symptoms and feel normal. I had a cardioversion this summer and it worked for a very short time (Dr.’s shocked me 2 times) then I fell back into afib again. I am wondering if an ablation would help?? Just lately I have been getting sore back muscles some days and was wondering if it is a side effect of the afib? Sounds silly asking but I’ve never had back issues before and wondering if they are connected.

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@dar49 You should consult an electrophysiologist to see if an ablation would help. Ablations are the 'gold standard of care' for most AF patients. But more, the earlier you have one the more likely it is to succeed in stopping your fibrillation. Left months and years, the heart's structure changes and it becomes much more difficult to treat.

I would expect that, in the right hands, the right EP with tons of experience, you are likely to be successfully ablated. Please get on this right away!

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