bone pain four months after Reclast Infusion

Posted by newenglandseasons @newenglandseasons, Aug 25, 2024

Does anyone have a story

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Profile picture for clarbs6 @clarbs6

Hi ~ Just finished Evenity. Scheduled for Reclast infusion in September. I am rethinking this continuance with Reclast. I developed a bone spur and OsteoArthritis in my left wrist, some bone pain and achy joints. Has anyone's doctor advised not continuing the follow up drugs?

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@clarbs6, the endocrinologist at Stanford who ran the clinical trials says that he hardly ever give the medication the second year, as the effects are sufficient for two years in most patients. You might ask for bone markers in September and again in February to see if you need the infusion.

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Profile picture for clarbs6 @clarbs6

Hi ~ Just finished Evenity. Scheduled for Reclast infusion in September. I am rethinking this continuance with Reclast. I developed a bone spur and OsteoArthritis in my left wrist, some bone pain and achy joints. Has anyone's doctor advised not continuing the follow up drugs?

Jump to this post

@clarbs6 What does your doctor say about your achy joints and osteoarthritis? My endocrinologist told me that I needed to have the Reclast infusion to make sure to "lock in" the gains I made after 12 months of Evenity.

Here is a website that explains this:

Endocrine and Diabetes-Houston Clinic:

-- https://endocrine.plus/education/osteo-evenity.html

What do you think about this explanation?

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Profile picture for gently @gently

@clarbs6, the endocrinologist at Stanford who ran the clinical trials says that he hardly ever give the medication the second year, as the effects are sufficient for two years in most patients. You might ask for bone markers in September and again in February to see if you need the infusion.

Jump to this post

@gently
Since Evenity is a one year only drug I’m confused about “the Stanford doctor hardly ever does a second year” ?
From what I’ve been finding in my research Reclast maintains your gains but Prolia does both and continues to gain modestly over 10 years? Is that what you have found?
That and what are your BMD numbers of improvements in percentages as well as tscores might have some bearing on what maintenance drug to go to.

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