What is the average life expectancy of untreated mac?

I have seen several post where people refer to bone health. I have been waiting for the opportunity to share this with everyone. Since I have learned about this I share this with everyone that I can. These are youtube links that will help you understand about K2, D3, and calcium. Dr. Berg also has a couple of videos you can search for. This is not new research but it was new to me when I learned about it. Now the K2 supplement is hard to find locally so I get it on line, the brand name nutricost Vit. K2 I get the one that also says MK-7 on the bottle. Please please take the time to learn of this and share it with others.
/https://youtu.be/D_UJaEZe9gg

I look at things much as you do. I can understand why you stopped meds after taking them for three years with no improvement. I had CT in February showing Mac had progressed. At that time I refused medication. Now I am considering taking big three. The nurse at ID dr suggested I try them for one week. She said there was a chance they would stop progression. I I thought the idea stop in progression sounded pretty good. But when I read some posts about side effects, I get cold feet. I will be 90 in June. To add to my confusion about the big three, another nurse at same doctors office told me if I were her mother, she would tell me not to take them. May I ask how old you are, and would I be presumptuous asking any other thoughts you may have about taking the big three? How are you now? Thank you.

@lauraadam2425 where were you treated?

I was 79 years old in March ,weighing 84=lbs ,when I learned that I had an NTM Cavitary mass .I tried taking 5 antibiotics and one I.V for just one week and was so sick that I was losing more weight.I knew that I couldn’t tolerate antibiotics because I have many G.I. issues. I went to a pulmonologist after my biopsies who said I must take antibiotics for two years, and I knew that was something that I could never do. I did look into having surgery for my mass and I did have a Robotic Lung Resection. I never presented with symptoms to begin with and still do not have any.
Before the surgery, when I thought antibiotics were my only choice, I decided not to treat, and just live whatever quality of life I had left.
As I read, you don’t die from this disease,but rather complications of it, i.e. heart failure, etc. Surgery saved my life, but I did make a decision prior to surgery that I would not treat and just have the best life I can for whatever time I can have it….. My surgeon said that antibiotics wouldn’t of worked anyway, and although most doctors go by the book, I would suggest if you’re not going to treat with antibiotics ,look for alternative ways to treat your bacteria ……Just live the best life that you can ,and be confident with your decision!!

@georgesav then what does it mean when you read someone lost their battle with MAC?

Don’t google that question

@reneemc
It most likely means they didn't lose their battle with MAC, that they had a comorbidity or two along with it, perhaps not getting vaccinated against the flu or Covid, which our lungs wouldn't enjoy and could mean trouble. You don't die from MAC itself -- you live with it and focus on what is positive in your life, living it the best you can. I haven't been on meds for 2.5 years now and am stable -- and I'm 81 years old. I go by the usual protocols, like airway clearance, etc. My sputum samples have come back from NJH as "no AFB" for the past 9 months in spite of them showing MAC/MAI for the 2 years before that. My samples consistently show my fungus happily growing in my lungs and I do have Bronchiectasis too. I also have frequent bouts of major hemoptysis and am still alive!

I do not read in depth the journeys of others (on search engines especially) because they may or may not be true and definitely don't reflect everyone else's journeys. Here I am 3 years after the diagnoses of 3 separate lung issues and living my life and, although not ideal, at least living and working around the effects of the diseases as best I can. We have no idea what our future will be health wise, whether we are healthy or not. Wishing you less stress and the best!