Any non fracture members?

Posted by rudysmom @rudysmom, May 18 7:24am

I guess I’m just looking for some encouraging words. I was diagnosed in February and still working through the different stages of grief/loss. I seem to have more days stuck in depression/sadness.

So, was just wondering if anyone on here has dealt with OP for quite a while and hasn’t fractured? I know you can fracture even if your scores are osteopenia range. I feel like everyday I’m just waiting for a fracture to happen. Im exercising 6 days a week and watching my food intake. I’m just hoping as time goes on this feeling lessens. Sometimes I’m not sure if it’s the diagnosis that’s making me sad or just the fact that I’m getting older, I’m 60, and reality has finally set in.

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

Profile picture for researchmaven @researchmaven

@kfhoz

Great paper -- many thanks. Old age, by itself, no matter what you do, is likely the most common culprit in bone breakage.

My take: Low bone density by itself won't necessarily predict bone breakage or worst case scenarios. Besides a DEXA, a bone quality (TBS) and FRAX (USA) score (you can calculate it yourself online) are useful in deciding if and which medicine to take.

Other than that, a good diet, adequate sleep, exercise, stretching, avoiding risky behavior that could result in falls, selecting a doctor that you have confidence in, and (for me) taking a drug that has no day-to-day side effects, is a reasonable approach.

My recommendation: Do your research to become informed, selecting high quality information sources and then take your own "reasonable approach."

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@researchmaven Definitely a good philosophy…just wondering what drug you’re actually taking with no day to day side effects? Thanks so much
Regards,
Pam

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Profile picture for stress101 @stress101

I’m 83 and had one fracture from lifting. Then two fractures from too strong therapy. Had Kyphoplasty in last two. Bone was extremely hard for dr to insert needle which attending nurse told me very unusual for osteoporosis which made us believe the therapy was issue. I have had OP since breast cancer in 2002. First T score. -3.1. Went on Actenol for two years until severe reaction. T score after that wad -3.7. So i took no more meds being most were all the same biphosamates. T scan was six years later was -3.2. Next in five was -3.1 six years ago. Last year -2.9. So mt OP has not progressed even getting older but has improved. Of course everyone was adamant I take Tymlos which I have tried four times this past year and had to stop due to extreme back pain adding to my existing back pain. Now it’s been 18 months, had new mri last month which was no change from last one in March 2025. Spine stable but I do have the ongoing desensitization due to muscle guarding my spine not unclenching. My long story here is when I look at other drugs, can’t take a couple due to heart disease. Can’t do Prolio due to recurring and on daily meds for UTI’s. It’s been mentioned that not having a new fracture in 18 months and not a horrible T score, I might be better to just be monitored and do special exercises. It’s difficult for me for I wanted to do what was best for me taking bone meds, but it’s like doors are shut on that due to other side effects that would be more dangerous for me than a fracture. But I worry about it all.

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@stress101 I can understand your being stressed.
I will be 83 this week and am choosing not to take any more meds other than Vit D with K2, Calcium and walking on the treadmill 40 minutes each day.In the past I did five years of Actonel and three years Reclast imfustions I tried other meds and could not tolerate them, thus my DEXA scores from my hip remain the same -.3, neck at -2.3 and spine -2.7. Neck and spine did improve. What I am understanding is once taking Evenity you have to continue with something else and pray for no side effects. What was not pointed out to me until I read what others have posted, is that being small boned my numbers could be overstated, since I have not had a TBS reading with my DEXA. I called the clinic to make sure their equipment was capable to give that score too. Aging out is what makes my decision today. All I can do is the research, read what has worked and not worked for others and let go and leave the rest in God’s hands.

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Profile picture for lylii @lylii

@joyboudreau
I hear you. I was 60 when I fell on the edge of a wooden ramp and cracked three ribs (I'm 66 now). For Heaven's sake, I think anyone at any age would have broken something with that fall. Of course, I was immediately sent for DEXA scan and of course it showed osteopenia. I was immediately told I had to start on medication. The nurse practitioner in charge of the Fracture Prevention Clinic gave me a brochure so I could choose which medication I wanted. My husband was already on Forteo, but he has rheumatoid arthritis, and definitely had weak bones. I had my choice of Forteo (don't remember why I didn't choose that one), Tymlos (caused cancer in rats, though at notably higher doses than ever given to humans), bisphosphonates (had watched a friend of my Mom's go through jaw necrosis on that one - no thanks), Prolia (once you start you can't ever stop or you will lose any and all progress made) and probably more meds I'm not remembering. I weighed my options and chose the Tymlos, knowing that I had a strong family history of kidney stones, and that was a potential side effect. I told the NP about it, but she just kind of blew it off. Sure enough, over a year in I started getting very bad abdominal pain. It wasn't in the area where kidney stones typically cause pain, so it took 9 months for me to be diagnosed (I stopped the Tymlos on my own). I even saw a urologist who announced that my pain was not typical kidney stone pain, but he would send me for pelvic floor therapy, because he hadn't known anyone who didn't benefit from pelvic floor therapy! That night I ended up in the ER with terrible pain. The proper scans were done, and I had a very large kidney stone stuck in my right kidney. No way was it coming out on it's own. Had to have a procedure to have it removed - miserable experience. I decided right then that there was no way I should have gone on any of those meds, and unless I had obvious severe signs of osteoporosis (not just a bit of osteopenia), I would not go on any of the drugs again. I don't really think I ever needed to go on the medication to start with, and I am angry that I wasn't smart enough to just say no. Obviously there are a lot of people with severe osteoporosis who must have these medications, but I do not believe that everyone who has osteopenia, or has a fracture caused by something that would likely give anyone a fracture, automatically needs to be put on these drugs. It took me awhile to get past the anger I felt from my experience (maybe I'm still not over it). Live your life, don't let numbers on a dexa scan report scare you to the point that you are afraid to live. PS, a week ago, I stepped backward and tripped on our small dog and took a hard fall right on my rear end, trying to avoid crushing the pup. Yep, I broke my tail bone. Of course I was immediately sent for a dexa scan - results were basically the same as one from two years ago - osteopenia. Am I going to go back on meds? Heck no. I know my post will probably make a lot of people angry, and I'm sorry - I'm just telling my story and my opinion.

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@lylii I just read your post and I am not angry, I agree with you. I have begun to feel the same way. I was diagnosed with osteopenia so long ago that I don't even remember when it was. I was put on Fosomax but would up quitting it on my own because of bad heartburn and nausea. Fast forward to this year and my most recent DEXA showed osteoporosis of the femoral head. I tried Fosomax again because now it was available in a once a week pill but the same thing happened. heartburn, nausea and this time miserable vomiting. I quit taking it again. I also have a chronic pain disorder that makes it very risky for me to try any of the drugs that can cause painful side effects. After doing my own research and reading the posts on here I have decided that I do not want to start on anything yet. I will wait until my osteoporosis is severe. I had 4 fractures during my osteopenia period but all of them healed well and my endocrinologist said they were not related to my bone density problems anyway. So just want to say thanks for your post, it has helped me have the courage to say 'no'.

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In response to the question of rudysmom, I am 73, and was diagnosed with osteoporosis when I was 51 years old. Thankfully, I have not fractured. I started on alendronate from 2004-2010, went drug holiday from 2010-2019, then back to alendronate from 2019 to early 2025. None of my doctors were tracking, and I did not know any better about limits on the use of alendronate until last year. My doctor put me on Tymlos in June 2025 with the most horrible side effects which I have previously written about. Stopped Tymlos in October 2025, then doctor put me back on half-a-dose of alendronate in November 2025. I decided to stop six weeks later and have no plans for returning to any osteoporosis medications (or that doctor). I have "used up" the allowed time for antiresorptives (alendronate); I will never try Tymlos again or Forteo for that matter; I can't take Evenity or any medication that increases my risk for vascular disease because of a strong family history on having this disease; and my oncologist would not allow me to go on HRT because I had breast cancer in 2000. Because there are currently no viable options for me in the long-term, I have chosen not to go on Prolia. I am managing my osteoporosis through improved nutrition, supplements, and Onero. In May 2026, my CTX score was 241 and my P1NP was 35.4---both very positive outcomes. Although my most recent DEXA scan shows severe osteoporosis for my hips (-4 T score) and osteopenia for my spine, a REMS scan last January showed a low five-year risk of fracture on my hips and femoral neck (3-5%) despite the -4 T-score on DEXA, and a slightly higher risk for my spine (5-9%). Although I have been doing DEXA scans since 2004, I don't trust it completely, especially given my very small frame. This is why I did REMS, which is far more reliable (it is not covered by insurance). In fact, the T-score results and fracture risk information provided by REMS are not aligned with the results of my DEXA scan's T-scores. If you are concerned about fracture, you might consider getting a REMS scan. The REMS scan results (along with the results of relevant blood tests) will provide you with information which you and your doctor could consider as you think about a way forward.

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Hi there, I just turned 45 last month & was diagnosed with osteoporosis years ago when I was 30. I don't even know if I ever had good bones. I remember when my doctor called me about my diagnosis I started crying & was totally depressed for some time but then accepted the reality & moved on. I didn't do any meds until now that just started Forteo this week. Never had any fractures or other issues.
This diagnosis at 60 & exercising daily would be my dream. I think you're doing just fine. Best of luck to you!

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Profile picture for frog100 @frog100

@stress101 I can understand your being stressed.
I will be 83 this week and am choosing not to take any more meds other than Vit D with K2, Calcium and walking on the treadmill 40 minutes each day.In the past I did five years of Actonel and three years Reclast imfustions I tried other meds and could not tolerate them, thus my DEXA scores from my hip remain the same -.3, neck at -2.3 and spine -2.7. Neck and spine did improve. What I am understanding is once taking Evenity you have to continue with something else and pray for no side effects. What was not pointed out to me until I read what others have posted, is that being small boned my numbers could be overstated, since I have not had a TBS reading with my DEXA. I called the clinic to make sure their equipment was capable to give that score too. Aging out is what makes my decision today. All I can do is the research, read what has worked and not worked for others and let go and leave the rest in God’s hands.

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@frog100 Thanks for your reply and understanding. It’s difficult being this toad of bone meds has no ending. I’m willing to be healthy as I can and live with my risk instead of still having risk and being unwell taking drugs. I may change my mind if my pain ever stops but as of now, I’m done. Again thank you and God bless.

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Question for anyone - is there not a difference between fragility fracture and regular fracture? I have osteoporosis currently but was told in the past a DEXA isn't done until the magic age of 65 (15 years post menopause for me) or if you should fracture. I broke my wrist a few years before age 65; the surgeon who put it together with plate and pins said my bone looked great and healing was basically perfect. I asked him about a DEXA and he didn't think it was necessary. I did not pick up something and spontaneously break a wrist. I was in a car wreck and the airbag broke it; emt and ER doc said they see this type of break all the time. Is there a difference in how fractures are perceived (traumatic vs fragility) or is everyone who breaks anything in any way after a certain age considered osteoporotic? After wrist healed my PC sent me for DEXA scan, and numbers did show osteoporosis, which I am treating. Seems odd to me that all fractures are considered equally. My nephew broke his wrist falling off a scooter (age 27) and did not get a DEXA...

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Profile picture for sadtonight123 @sadtonight123

@researchmaven Definitely a good philosophy…just wondering what drug you’re actually taking with no day to day side effects? Thanks so much
Regards,
Pam

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@sadtonight123

Hello! I have been on the brand name Atelvia 35 mg, weekly, for 10+ years with a one-year drug holiday after 5 years. It doesn't roll back my osteoporosis. It does make me "stable" according to my specialist, who has retired.

Note that with it, and especially the generic version, you need to drink a lot of water with it -- 1-2 full glasses,. or it can be harsh on your gut I warm the water to make it go down easier.

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Profile picture for jozer @jozer

Question for anyone - is there not a difference between fragility fracture and regular fracture? I have osteoporosis currently but was told in the past a DEXA isn't done until the magic age of 65 (15 years post menopause for me) or if you should fracture. I broke my wrist a few years before age 65; the surgeon who put it together with plate and pins said my bone looked great and healing was basically perfect. I asked him about a DEXA and he didn't think it was necessary. I did not pick up something and spontaneously break a wrist. I was in a car wreck and the airbag broke it; emt and ER doc said they see this type of break all the time. Is there a difference in how fractures are perceived (traumatic vs fragility) or is everyone who breaks anything in any way after a certain age considered osteoporotic? After wrist healed my PC sent me for DEXA scan, and numbers did show osteoporosis, which I am treating. Seems odd to me that all fractures are considered equally. My nephew broke his wrist falling off a scooter (age 27) and did not get a DEXA...

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@jozer, the real difference is a fracture that wouldn't have happened unless you have osteopenic or osteoporotic bones.
The medical definition of a fragility fracture is a fracture resulting from a low energy fall from a standing height or less, or a fracture from some minor stress, like coughing that wouldn't normally cause a fracture.
You have a good PC.

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