Connect
Can’t regulate body temperature.
Hi. I’m a newbie here and am like probably everyone has been - at my wits end. I need to find a new Dr but don’t know where to start. Problem is - I can’t regulate my body temperature at all. One moment I am hot. Next I am sweating. Next minute I’m shivering cold and totally wet from the sweat. Doesn’t matter if it is day or night. House is at 63, ceiling fan on high, naked in bed with single sheet for cover - I’m sweating- then cold … 10 mins later same thing again. All night long ball day long too. Outside in 33 degree weather and I’m sweating in a long sleeve t shirt. Hair wet from sweat. Can’t get cool. Then all of a sudden I’ll get cold for a little bit and shiver for a while. I’ve had test after test and yesterday I got a diagnosis of hereditary angiogram’s and mast cell activation. That makes no sense based on symptoms although I may have that too I doubt it. It isn’t hormonal and not thyroid related. I’ve searched and searched but can’t find anything similar. Any help is welcomed. Thank you
Like
Helpful
HugInterested in more discussions like this? Go to the Autoimmune Diseases Support Group.
Connect
@altabiznet Was this response from AI? Unless you are a physician, please don’t answer with suggestions of diagnosis , i.e. dysautonomia.
Becky
-
Like -
Helpful -
Hug
1 ReactionNvm, wrong post and can't figure out how to delete it
I have the exact same thing. I’m actually going to see a sweat surgeon to possibly have surgery. I don’t even want to leave my house
@hjonker123 I've never heard of a sweat surgeon. Great to know. Do we need to be referred by someone? I don't even know where to start
@altabiznet
Thanks for info. Helpful to me & fits quite well. Have you learned these things through your experience? Blessings!
@h16027
This is based on experience as well - post chemoradiation associated with stem cell transplant. My autoimmune condition is also contributing, but the onset of dysautonomia happened right after chemo.
I started getting the chills (I was living in the desert, it was 100 degrees outside, I would shut the AC open the windows and sit with a blanket wrapped around me when I was working) a few months after a bout of Covid. I also had pelvic pain, lower back pain, bloodshot eyes.. long list of symptoms. I'm still trying to get tested for MCAS (apparently it's a complicated time sensitive process) but all indicators point to that. I also started sweating for no reason (a few months later) and had a very hard time with that. I saw an acupunturist who advised me to eating warming foods (no more salads, raw fruit, cold drinks, etc) and that seemed to help enormously.. I have also gotten a list of high and low histamine foods which has helped even more (when I avoid high histamine, my body temp regulation works better) AND started on a GLP-1 (for the anti inflammatory benefits) and that has helped even more. MCAS seems to be on the rise as the latest autoimmune condition that all the sudden it feels like is all over the place. Also I started taking Claritin and Pepsid every morning, both have helped alot. Believe it or not, I saw 9 doctors, not one even mentioned MCAS.. an RD I worked with for 2 years brought it up, and my son in law (who is a veterinarian ) suggested the Claritin, Pepsid and GlP-1... none of the doctors I saw offered anything. I hope you find relief very soon!
@artemis1886
Hi
I too have a crazy illness if you will. Any AC makes me sick. However it it’s like 78 and above I’m dripping. So I put on the AC and then I get sick. Haven’t found ANY doctor that understands this.
Ruining my life
Harold
Haroldrubin1@aol.com
@altabiznet
Thanks so much! I appreciate. Peace be with you always!