Can’t regulate body temperature.

Posted by alex63 @alex63, Dec 14, 2024

Hi. I’m a newbie here and am like probably everyone has been - at my wits end. I need to find a new Dr but don’t know where to start. Problem is - I can’t regulate my body temperature at all. One moment I am hot. Next I am sweating. Next minute I’m shivering cold and totally wet from the sweat. Doesn’t matter if it is day or night. House is at 63, ceiling fan on high, naked in bed with single sheet for cover - I’m sweating- then cold … 10 mins later same thing again. All night long ball day long too. Outside in 33 degree weather and I’m sweating in a long sleeve t shirt. Hair wet from sweat. Can’t get cool. Then all of a sudden I’ll get cold for a little bit and shiver for a while. I’ve had test after test and yesterday I got a diagnosis of hereditary angiogram’s and mast cell activation. That makes no sense based on symptoms although I may have that too I doubt it. It isn’t hormonal and not thyroid related. I’ve searched and searched but can’t find anything similar. Any help is welcomed. Thank you

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@sandalwood65
Unfortunately, you have multiple autoimmune diseases that are contributing. Dysautonomia along with Raynaud's can be causing vasoconstriction, chills and loss of temperature regulation mechanisms in the body. You may want to see a neurologist to get checked for dysautonomia. However, main treatments are still immunosuppressive drugs for RA and PSA plus calcium channel blockers for Raynaud's. Your neurologist may be able to offer some steroids. Beta-blockers are known to work for arrythmias, if you have abnormal heart rhythm.

Dysautonomia causes a wide range of symptoms due to dysfunction of the autonomic nervous system, affecting heart rate, blood pressure, digestion, temperature regulation, and more.
General Symptom Categories
Dysautonomia can impact multiple body systems, leading to diverse and sometimes unpredictable symptoms. Common manifestations include:

Cardiovascular: Rapid or slow heart rate (tachycardia or bradycardia), irregular heart rhythms (arrhythmias), low or unstable blood pressure, fainting or lightheadedness, especially when standing (orthostatic intolerance)
clevelandclinic.org
clevelandclinic.org
+1
.
Neurological: Brain fog, difficulty concentrating, migraines, dizziness, balance problems, and fatigue
clevelandclinic.org
clevelandclinic.org
+1
.
Gastrointestinal: Nausea, vomiting, constipation, diarrhea, and difficulty swallowing (dysphagia)
clevelandclinic.org
clevelandclinic.org
+1
.
Respiratory: Shortness of breath or exercise intolerance
clevelandclinic.org
clevelandclinic.org
.
Urinary and Sexual: Frequent urination, urinary incontinence, and sexual dysfunction

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@altabiznet Was this response from AI? Unless you are a physician, please don’t answer with suggestions of diagnosis , i.e. dysautonomia.
Becky

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