Should you get a bone test if only on ADT for 6 months

Posted by pamperme @pamperme, Aug 8 12:46pm

I am 73 and was on Orgovyx for six months and had 38 sessions of radiation treatment for a reoccurrence of prostate cancer. At 7 weeks off of Orgovyx I am at 214 tester one compare to 567 before treatment. Should I be asking for a bone density test, my Dr has not bought the issue up.
Best wishes to all
Timmy

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Profile picture for monte09 @monte09

@clevelandguy Thanks for comments. my PSA in May was .014 and I am due to get another test next week prior to 1 year Radiation Oncology follow-up. I was told that the side effects with Hormone treatment would be 10% compared to prostate removal or implants. That has not been the case...it's more like 40-50% side effect issue. The fact that after the 3rd shot, my hips started hurting was very troublesome and disabling to normal life...hard to walk. The bone density completed at mid-treatment was normal but Orthopedic Surgeon says Bursitis could be started. I am still going to request a PET scan because quick onset of severe side effects in bone and skin itching after 3rd shot is troubling. I was told prior to being diagnosed for Prostate Cancer that the increased PSA score after 70 years old is natural....then I was diagnosed with an aggressive Aden Carcinoma Cancer. I question everything.

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@monte09
Hi,
At .014 you are down into undetectable category. Hope for many more .01 type readings, you’re doing great.
Dave 3+4

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Profile picture for monte09 @monte09

@jeffmarc Thanks Jeff for your comments. I had a bone scan...it was normal. As I discussed with "clevelandguy", the side effects after shot 3 came on strong and disabling. I have done some research and there is a possibility that cancer cells become immune to hormone meds and seek other sources to survive. Per my Urologist, my cancer was very aggressive and climbed very fast until my first hormone shot. I am going to continue to look at all testing options available. Had my PCP intervened two years prior when PSA started climbing, the last 18 months of discomfort and doubt could have been avoided or less intrusive.

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@monte09
I have osteoarthritis, so my joints have definitely had some problems with needing replacement. I’ve had both knees and one hip replaced. My other hip started to give me some real problems, I started doing weight exercises on my legs and my hip problem went away. They called me to have my surgery date set and I told him forget about it, more than six months ago. I no longer have pain in that hip. Had the same sort of experience of one of my shoulders, Doing a weight exercise is made a major difference.

Not sure if you’re doing any, but it might be time to start.

I do have a little joint pain from the drugs, but I take 600 mg of gabapentin three times a day and it eliminates that problem.

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Profile picture for oldgreenpaint @oldgreenpaint

My experiences while on Firmagon, which doc initially said would be 6-12 months.

No offer for a DEXA was made by my COE care team. After first one month shot of Firmagon I was watching a PCRI 8 hour long video for their September 2025 conference in Los Angeles. Within the video one oncologist said that ANYONE that will be starting on a course of ADT should have a DEXA. So I asked the oncologist taking care of me about that. His reply paraphrased was since I asked they would do it. But that Medicare may not pay the test cost. Told him I didn’t care and wanted a scan. It came back showing that I ALREADY HAD osteoporosis. Visited and Endocrinologist and she did a zoledronic acid infusion. Also taking vit D and Calcium. And three hours a week doing resistance weight exercises.

Point is that you will need to advocate and press the care team to have this test done. Things could have turned out really bad for me, and it was just luck to a degree that helped.

I pulled the plug on Firmagon after five injections. Last one was mid February. Mid June checkup had me at undetectable levels of both psa and testosterone. So my five months of Firmagon (started October 2025) has at this point turned into 10 months and counting. So glad I stopped when I did.

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@oldgreenpaint
Fortunately my oncologist ordered a Dexa at the start of my 18 month regime of Orgocyx, which showed mild osteopenia. He has me on Prolia, and I am doing daily impact loading exercises.

@jeffmark do you know if medicare covers yearly Dexa scans for individuals on ADT? My wife is only allowed one every 2 years and she is on a yearly Reclast infusion.

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Profile picture for johnny8924 @johnny8924

Gleason 9 diagnosed in August 2024. I was on Orgovyx for 20 months, ending in April 2026. Twenty-five sessions of IMRT. PSA presently less than 0.04. 74 years old. Presently taking Centrum 50 Plus multivitamins and Omega 3 fish oil daily. I'm debating whether or not to take Calcium Citrate supplements because I had a kidney stone removed four months ago and still have a non-obtrusive small stone in the other kidney.

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@johnny8924
Since you had kidney stones you should be very careful with Ca supplementation.

If I were you I would ask my doctor about that since Ca and D supplementation actually was never proven to help preventing bone loss.

There were no studies conducted comparing man on ADT who took Ca + D and those that did not and what is even more troubling there are some studies that show that Ca supplementation can increase coronary disease risk, kidney stones and even can have "positive" effect on PC progression.

I found about all that yesterday while doing some reading about recommended daily levels of Ca in diet and was shocked : (.

Here are some links :
https://www.theoncologynurse.com/articles/ton-3879
https://pmc.ncbi.nlm.nih.gov/articles/PMC3448410/
Hope this was of some help and wishing very fast healing of your kidney. It can be extremely painful condition : ((

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Profile picture for pesquallie @pesquallie

@climateguy

I know of no one who had the tests you listed. Everyone I know got radiation or surgery with only a biopsy and PET scan. All also got ADT for 18 or more months.

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@pesquallie
My husband has monthly labs done (complete metabolic panel) since he started his ADT, had DEXA and also EKG ordered by his MO and RO. His labs are perfect but still labs are done every month. He is now going through RT.

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I am scheduled for a dexa in November. I should have been tested before.
Best wishes everyone
Timmy

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Profile picture for surftohealth88 @surftohealth88

@johnny8924
Since you had kidney stones you should be very careful with Ca supplementation.

If I were you I would ask my doctor about that since Ca and D supplementation actually was never proven to help preventing bone loss.

There were no studies conducted comparing man on ADT who took Ca + D and those that did not and what is even more troubling there are some studies that show that Ca supplementation can increase coronary disease risk, kidney stones and even can have "positive" effect on PC progression.

I found about all that yesterday while doing some reading about recommended daily levels of Ca in diet and was shocked : (.

Here are some links :
https://www.theoncologynurse.com/articles/ton-3879
https://pmc.ncbi.nlm.nih.gov/articles/PMC3448410/
Hope this was of some help and wishing very fast healing of your kidney. It can be extremely painful condition : ((

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@surftohealth88

Thank you for finding these articles, my oncologist has me taking both calcium and Vitamin D. I'll be sure to discuss this with him tomorrow during our scheduled appointment. Certainly there needs to be more studies as these findings go against almost everything else I have read and I think most oncologists suggest Ca + D supplements to their patients on ADT.

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Profile picture for carlsbadguy @carlsbadguy

@oldgreenpaint
Fortunately my oncologist ordered a Dexa at the start of my 18 month regime of Orgocyx, which showed mild osteopenia. He has me on Prolia, and I am doing daily impact loading exercises.

@jeffmark do you know if medicare covers yearly Dexa scans for individuals on ADT? My wife is only allowed one every 2 years and she is on a yearly Reclast infusion.

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@carlsbadguy I was told that Medicare may not pay for the DEXA. But once I was scanned and found positive for osteoporosis there was no problem with Medicare paying. If you have osteoporosis you will likely be treated for osteoporosis . I was and am. The only way to tell if treatment is working is by a yearly scan. I will have another in November. I believe the cash price for the scan would have been $600 or so. My take on this after going through it all, is that a DEXA absolutely needs to be done, even if you have to pay for it yourself. Which I fully expected I would have to do, but in the end did not.

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