SCAM alert for Neuropathy treatment

Posted by ktbs @ktbs, Mar 31 11:42am

Why is it legal for AI created videos to sell products for neuropathy supposedly endorsed by Dr. Phil, Dr. Oz and others? I always check to see if they are scams and so many are. Not sure why they are not prosecuted and put out of business.

Interested in more discussions like this? Go to the Neuropathy Support Group.

please allow me to stay in the neuropathy support group

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Profile picture for royt500 @royt500

please allow me to stay in the neuropathy support group

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@royt500 Welcome to Connect! Have you been diagnosed with neuropathy? What information are you looking for?

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Just remember, unless you have. An identifiable cause for your particular type of neuropathy, like a vitamin deficiency, there is NO CURE for neuropathy.

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Profile picture for julkun @julkun

@blowerk1216 Good for you. So, what works for neuropathy? What cures neuropathy? What reduces the severe pain?

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@julkun I have tried many test to see what caused my neuropathy. Finally figured it out that I have Amyloidosis. Get tested for Amyloidosis from your doctor.

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Profile picture for magnum52 @magnum52

Just remember, unless you have. An identifiable cause for your particular type of neuropathy, like a vitamin deficiency, there is NO CURE for neuropathy.

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@magnum52 I have tried many test to see what caused my neuropathy. Finally figured it out that I have Amyloidosis. Get tested for Amyloidosis from your doctor.

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Profile picture for ubkool38 @ubkool38

I think I just got taken for “Nerve Reset Drops” advertised by Dr, Ben Carson and shipped by Buy Goods with the promise if you bought the largest amount the full price would be immediately be deposited back into my checking account , which should have been a red flag, I really have no excuse, just gullible. Anyway, a word to the wise is sufficient, and hope my ignorance will help someone else.
I used my credit card not bank account so how would they have the account number to deposit the refund???Haha! I fell for that one. I did call my bank and report them as fraudulent

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@ubkool38 When we are in severe pain, we will try almost anything that looks promising. I "almost" always do an online search of these scams. This will give me the skinny on such products. Early on I got scammed by a website selling some kind of nerve aid that was a miracle cure for neuropathy. Like your ad, this one was hyped by Clint Eastwood and Mr. Wonderful from Shark Tank. Hey, these guys wouldn't lie, so I ordered the larger-sized bottle. I paid with my trusty credit card. Soon, I received a notice from the credit card company asking if I had made the order. Yes! Absolutely! Just to be safe I did an online search. Guess what? A total scam! I had to immediately cancel the credit card. Then, I spent what seemed an hour. making the requisite changes on the account. I don't even look at any ads claiming to show something relating to neuropathy.

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Has anyone out there tried this patch for pain. It looks sort of like Salonpas but it has no medication in it. Instead it has what looks like a bunch of tiny wires crisscrossing through it. It is supposedly reusable for multiple uses. Oh, here it is: "Kalio Flex Natural Pain relief patch". Many different sizes and prices. 3.2/5 stars. Anyone have experience with this or any cousins? Thanks..

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Profile picture for jdm0129 @jdm0129

@magnum52 I have tried many test to see what caused my neuropathy. Finally figured it out that I have Amyloidosis. Get tested for Amyloidosis from your doctor.

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@jdm0129 só, now that you know the cause, are you being treated for it and if so, is it helping your neuropathy?

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I am getting diagnosed on the type of amyloidosis (AL or ATTR). Once they knownthe type, i will get treatment. Hopefully know by the end of this week

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I absolutely agree, what type of person exploits the weak and vulnerable. Hasanyone in the group been scammed, I certainly have. How can the group devise a method to warn our members of all the scams they come across. It might deter some of the scammers. There are some genuinely clever people out there that have been researching this problem for years. The knowledge that must have been accumulated I guess is vast. Come on lads let’s start helping each other

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