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SCAM alert for Neuropathy treatment

Posted by ktbs @ktbs, Mar 31 11:42am

Why is it legal for AI created videos to sell products for neuropathy supposedly endorsed by Dr. Phil, Dr. Oz and others? I always check to see if they are scams and so many are. Not sure why they are not prosecuted and put out of business.

Interested in more discussions like this? Go to the Neuropathy Support Group.

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heisenberg34 | @heisenberg34 | 2 days ago
In reply to @bigjohnscho "I absolutely agree, what type of person exploits the weak and vulnerable. Hasanyone in the group..." + (show)
Profile picture for bigjohnscho @bigjohnscho

I absolutely agree, what type of person exploits the weak and vulnerable. Hasanyone in the group been scammed, I certainly have. How can the group devise a method to warn our members of all the scams they come across. It might deter some of the scammers. There are some genuinely clever people out there that have been researching this problem for years. The knowledge that must have been accumulated I guess is vast. Come on lads let’s start helping each other

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@bigjohnscho Just about any "miracle cure" for neuropathy, especially those being touted by "celebrities", are probably scams. We should all know the old saying, "If it sounds too good to be true, it probably isn't. When in doubt, ALWAYS do an online search.

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blowerk1216 | @blowerk1216 | 1 day ago
In reply to @bigjohnscho "I absolutely agree, what type of person exploits the weak and vulnerable. Hasanyone in the group..." + (show)
Profile picture for bigjohnscho @bigjohnscho

I absolutely agree, what type of person exploits the weak and vulnerable. Hasanyone in the group been scammed, I certainly have. How can the group devise a method to warn our members of all the scams they come across. It might deter some of the scammers. There are some genuinely clever people out there that have been researching this problem for years. The knowledge that must have been accumulated I guess is vast. Come on lads let’s start helping each other

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@bigjohnscho yes I have and I had a major issue getting my money back. Fortunately my state AG office helped me and I got it back,

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John, Volunteer Mentor | @johnbishop | 1 day ago
In reply to @bigjohnscho "I absolutely agree, what type of person exploits the weak and vulnerable. Hasanyone in the group..." + (show)
Profile picture for bigjohnscho @bigjohnscho

I absolutely agree, what type of person exploits the weak and vulnerable. Hasanyone in the group been scammed, I certainly have. How can the group devise a method to warn our members of all the scams they come across. It might deter some of the scammers. There are some genuinely clever people out there that have been researching this problem for years. The knowledge that must have been accumulated I guess is vast. Come on lads let’s start helping each other

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@bigjohnscho That's why we are here to help each other! It does start like others have mentioned by each of us being aware of scams and doing our own research. This might help:

-- Don't believe the hype: 6 tips to identify trustworthy health information:
https://www.mcmasteroptimalaging.org/blog/detail/blog/2017/05/02/dont-believe-the-hype-6-tips-to-identify-trustworthy-health-information
-- Vetting Information on Peripheral Neuropathy: https://www.foundationforpn.org/wp-content/uploads/2025/01/VettingPNinfo.pdf

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kwcoop | @kwcoop | 1 day ago

Has anyone heard of this newest one about Methaline Blue, does not say it cures it , just eases the
symptoms somewhat.

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John, Volunteer Mentor | @johnbishop | 1 day ago
In reply to @kwcoop "Has anyone heard of this newest one about Methaline Blue, does not say it cures it..." + (show)
Profile picture for kwcoop @kwcoop

Has anyone heard of this newest one about Methaline Blue, does not say it cures it , just eases the
symptoms somewhat.

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@kwcoop Haven't heard anyone mention it here on Connect. Some research on it but don't think it has been FDA approved for any neuropathy treatment. Definitely one with risks and adverse side effects for some people so you would want to make sure to discuss it with your doctor first. Here's some research:
-- Methylene Blue: https://www.ncbi.nlm.nih.gov/books/NBK557593/
-- Methylene Blue Application to Lessen Pain: Its Analgesic Effect and Mechanism
-- Adverse effects of methylene blue in peripheral neurons: An in vitro electrophysiology and cell culture study: https://pmc.ncbi.nlm.nih.gov/articles/PMC8165385/

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ktbs | @ktbs | 23 hours ago

It is a scam with some possible bad side effects according to the scam alert on it.

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heisenberg34 | @heisenberg34 | 4 hours ago
In reply to @johnbishop "@kwcoop Haven't heard anyone mention it here on Connect. Some research on it but don't think..." + (show)
Profile picture for John, Volunteer Mentor @johnbishop

@kwcoop Haven't heard anyone mention it here on Connect. Some research on it but don't think it has been FDA approved for any neuropathy treatment. Definitely one with risks and adverse side effects for some people so you would want to make sure to discuss it with your doctor first. Here's some research:
-- Methylene Blue: https://www.ncbi.nlm.nih.gov/books/NBK557593/
-- Methylene Blue Application to Lessen Pain: Its Analgesic Effect and Mechanism
-- Adverse effects of methylene blue in peripheral neurons: An in vitro electrophysiology and cell culture study: https://pmc.ncbi.nlm.nih.gov/articles/PMC8165385/

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@johnbishop We used to use methylene blue as part of our staining procedure for white blood cells.

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