Seeking care for intracranial hypertension: Rare Brain Disease

Hello, I put in a request for an appointment. I had done this prior and was treated in a professional manner. I got a call then called back unfortunately what happened was confusing and disheartening. The person I spoke with left me without confidence. I decided not to follow up. I had spoken before and it had been good. I am disheartened. I spoke with neurology I believe. I decided not to send my records at all. Is there any way to start over? When does it time out? Do I wait another year?