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Parkinson's plus Multiple System Atrophy (MSA)

Posted by pammettee @pammettee, Apr 26, 2018

Is anyone one discussing this diagnosis ?

Interested in more discussions like this? Go to the Parkinson's Disease Support Group.

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kaymirkes | @kaymirkes | Dec 9, 2025
In reply to @kaymirkes "@hopeful33250 Thank you for sharing the article. I read it in detail. The only symptoms my..." + (show)
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@hopeful33250

Thank you for sharing the article. I read it in detail. The only symptoms my husband has currently are bradykinesia, balance, gait, speech issues & REM dreams he acts out. His symptoms began 3 years ago & we believe his progression has been slow; however, I don’t know if a doctor would agree, but that’s our opinion. He’s 75 years old. His neurologist put him on melatonin 3 mg for the REM dreams & that has been very effective. His diagnosis is MSA-Type C.

I appreciate this forum & hope good information will come out of it.

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@kaymirkes

I wanted to add - my husband’s diagnosis was determined by the results of a brain MRI that was done with & without contrast, plus physical exam.

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Teresa, Volunteer Mentor | @hopeful33250 | Dec 10, 2025
In reply to @kaymirkes "@hopeful33250 Thank you for sharing the article. I read it in detail. The only symptoms my..." + (show)
Profile picture for kaymirkes @kaymirkes

@hopeful33250

Thank you for sharing the article. I read it in detail. The only symptoms my husband has currently are bradykinesia, balance, gait, speech issues & REM dreams he acts out. His symptoms began 3 years ago & we believe his progression has been slow; however, I don’t know if a doctor would agree, but that’s our opinion. He’s 75 years old. His neurologist put him on melatonin 3 mg for the REM dreams & that has been very effective. His diagnosis is MSA-Type C.

I appreciate this forum & hope good information will come out of it.

Jump to this post

@kaymirkes

I hope that his appointment at the MSA clinic goes well. Has any physical therapy been suggested or tried?

Did your husband's doctor explain what was seen on the MRI that led to this diagnosis?

I look forward to your posts as you and your husband take this unexpected journey. Will you continue to post with updates, questions or concerns?

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kaymirkes | @kaymirkes | Dec 10, 2025
In reply to @hopeful33250 "@kaymirkes I hope that his appointment at the MSA clinic goes well. Has any physical therapy..." + (show)
Profile picture for Teresa, Volunteer Mentor @hopeful33250

@kaymirkes

I hope that his appointment at the MSA clinic goes well. Has any physical therapy been suggested or tried?

Did your husband's doctor explain what was seen on the MRI that led to this diagnosis?

I look forward to your posts as you and your husband take this unexpected journey. Will you continue to post with updates, questions or concerns?

Jump to this post

@hopeful33250

Oh yes, I meant to add to my previous message. He has done two rounds (prescriptions) of PT & speech therapy & both were effective. And more is to come. He started a gym routine on circuit machines 7 months ago; works out faithfully 3 times a week. He doesn’t see improvement with the gym although I believe it has helped him get around as well as he does currently. At the end of the last appointment with the doctor, my husband asked, “What can we do?” And the doctor said, “Exercise, PT, OT & speech therapy. Exercise is paramount.” He also rides a 3-wheel bike several times a week.

The brain mri shows atrophy in his cerebellum & brainstem so that’s why the doctor diagnosed MSA-Type C.
I will continue to post in the hope others will share their experience with this rare disorder & we can learn from each other.

Our prayer is he will qualify for clinical trials & we’re encouraged by the fact that every successful therapy/medication began as a clinical trial.

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mirthburrisy | @mirthburrisy | 1 day ago

My husband was well into stage 3 MSA. His decline was rapidly devastating but could still walk with some assistance. Weakness, imbalance, bladder issues inc frequent UTI’s, incontinence & retention, bowel issues, were a few of his symptoms he was put on levodopa and carbidopa. Neither standard treatment like B1 and high dose B12 did very little for him. We tried different supplements that didn't work, so last August, our family doctor started him on the MSA-5 protocol—the best decision ever! 2 months into treatment he improved dramatically. At the end of the full treatment course, the disease is totally under control. Cases of muscle weakness, constant twitches and tremors eased. My husband has resumed his daily activities. As I share this experience, he’s active again. I’m surprised a lot of people with Multiple System Atrophy type c haven’t heard of the MSA-5 protocol. We got the treatment from this website, Limitless naturalwellness. co m

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