Non Directed Living Donors

Posted by tinamarbury @tinamarbury, Jul 22 1:04pm

I am testing to be non-directed living donor through Mayo. I was wondering if anyone else has done that and if they were approved, what is the average time between approval and surgery? Thank you!

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Profile picture for judithw @judithw

@tinamarbury
Abdominal binder (a wide elastic with velcro that is wrapped around your torso). it's for after surgery to support an abdominal incision. The hospital staff will ask if you want one. I found it helpful.

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@judithw Interesting. My niece donated a kidney a week and half ago at Mayo Phoenix. She was not offered any binder. She went on Amazon and bought wide band yoga type pants to add a little pressure on her abdomen. A couple of people on the staff who saw her during her stay (she doesn't remember who) also told her that Mayo gives a cute character plushie kidney, to donors but she never received one. She was wheeled into the hall near the nurse's station where staff clapped for her, read a thank you statement, and had her ring a bell. Otherwise, it was a typical hospital stay.

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Profile picture for Kristine caregiver @annebeth

@judithw Interesting. My niece donated a kidney a week and half ago at Mayo Phoenix. She was not offered any binder. She went on Amazon and bought wide band yoga type pants to add a little pressure on her abdomen. A couple of people on the staff who saw her during her stay (she doesn't remember who) also told her that Mayo gives a cute character plushie kidney, to donors but she never received one. She was wheeled into the hall near the nurse's station where staff clapped for her, read a thank you statement, and had her ring a bell. Otherwise, it was a typical hospital stay.

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@annebeth
That's so odd about the differences. I did get the kidney stuffy. It actually serves a purpose...placing it during travel, so it protects the incision site. Nothing like a hard braking in a car and a seat belt making hard contact.
I do think it might have a lot to do with what the nurses observe. It would be good if care was consistent (especially between Mayo facilities).
Hope your neice is recovering well. I appreciate her being a living donor. ❤️ and thank you for being a caregiver.❤️

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Profile picture for sarah232 @sarah232

Hi,
I replied to you in the other thread as well. I’m a non-directed donor too and I signed up in January and my surgery is scheduled for July 29th. The initial bloodwork was done in a week. Scheduling the full day of testing where you see the whole team happened in April and then the team met to discuss my eligibility. They had a couple of follow-up inquiries so that took a few weeks and then I was approved. I was ready to do the surgery right away but it takes time to do the coordination piece so another 3 weeks and then my “21 day window” starts and then it takes time to find the best match. Even still, there are last minutes health concerns on the recipient side that mean it’s an “all prayers appreciated” process to get to “the surgery is a go” on July 29th.
Hope this helps,
Sarah

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@sarah232
I've been thinking about you all day. I hope the the surgery went ahead as planned and that you are doing well.
Sending prayers and a gently hug.

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Profile picture for Rosemary, Volunteer Mentor @rosemarya

@sarah232
I've been thinking about you all day. I hope the the surgery went ahead as planned and that you are doing well.
Sending prayers and a gently hug.

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@rosemarya thank you! Yes, I think it went very well. I’m hoping all went well for my recipient.🤞🏻🙏🏻
I have been up walking twice this evening and am looking forward to getting the Foley out at 5 am tomorrow so walking gets easier.

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Profile picture for sarah232 @sarah232

@rosemarya thank you! Yes, I think it went very well. I’m hoping all went well for my recipient.🤞🏻🙏🏻
I have been up walking twice this evening and am looking forward to getting the Foley out at 5 am tomorrow so walking gets easier.

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@sarah232
So glad to hear this, Sarah. Sending good healing vibes your way.

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