Long Covid

I have seen some people diagnosed with LC years after. When did you get the symptoms of LC?

pamil@pamil It would be very helpful if you could provide information about the medical testing you went through to reach the Long Covid diagnosis for those in this Mayo Group, who have had LC symptoms but their doctors and specialists have not been successful in reaching the conclusions your doctor achieved. Knowing if it was a specific test would be provide a pathway for others to talk to their doctors about how findings were reached. This blog group has over 3 years of stories from sufferers who still are ill and their doctors for the most part have been able to determine it was LC.

@pattig09 So sorry you're not feeling well.Actually,one doesn't need a dr's verification.How do you feel NOW and in the past since covid got ya.Are you feeling better or worse since covid?Sounds like long covid to me dear.Even if they 'can't find anything'...which in a lot of cases,they can't.Which is 'confusing' to patient and dr.

Sure you didn't get reinfected again?Some people I know have had it at least 5 times.And apparently little to no symptoms....I had it twice...didn't even KNOW i had it the second time.Went in for something else. First infection....early 2020.One of the two huge life changers for me.It's almost gone...lots of water,lots of good vitamins.Lots of hoping and praying.God Bless and get well quickly.

@h2998sc I am not the one in my post, I was asking Pamil if they could help the LC group with details of what test led to a diagnosis. For me it took 3 years to get to get to a diagnosis and it was testing of my immune system that was the key to opening the door to solutions.

It's considered a "diagnosis of exclusion". That means everything else has to be ruled out. There's not a test for it, per se.

This is a long article, but it is fairly recent. You may be able to glean something from it.

Updated Clinical Practice Guidelines for the Diagnosis and Management of Long COVID - PMC https://share.google/s84XpVKLiW6FWsLFP

@pattig09 They can't detect covid in someone's body once the virus has run it's course.If you get tested 3 months out let's say,you won't come up with covid pathogens.Even shorter than that.If someone's had it,and starts having 'odd' things with their body...you still won't find covid debris after that.Even if you feel REALLY sick.That's been my experience with this.The symptoms and damage doesn't need to be catastrophic.
Most doctors don't want to be interested chasing a patient's symptoms.Or how it got there.

@pattig09 Sorry...Still not clear of ALL my brain fog yet...LMAO

@h2998sc Last August I took this article with me on doctor visits: https://www.sciencedaily.com/releases/2025/08/250811104235.htm It lead one doctor who was trying to determine why I kept testing positive for Covid 2 years after I had Covid D to do testing of my blood and on the long strings of yellow drainage from my sinuses. This lead to the discovery that my immune system had been completely compromised. This disfunction discovered problems with the C4 and C3 and almost no CD8 T-Cells. In summary, my body could detect the spike protein, hunt them down and blow them up, but with no CD8 cells to transport the fragments safely out of my body, those fragments survived and then replicated throughout my body. And, the key discovery of fragments of 'spike proteins' from lingering viral reservoirs or active replication in the yellow drainage was the result of my immunity dysfunction. I had become a walking replication factory for spike proteins. The worst was in the 'brain drain' sinus which is the Sphenoid cavity. Brain fog was tied to a clogged Sphenoid. That drainage was impacting malefactor sinuses and closing them up, causing headache that felt like I was having a stroke, killing my taste buds and enlarging my tongue. That yellow drainage destroyed my biome in both upper Gi and lower tracts. My health was so bad it actually impacted my liver because the spike protein were also deposited there. I found treatment options from just an exam of my Sphenoid and a blood work up. I'm almost back to my normal pre-Covid self.

So awful.Yet you're healing.Thank God.This virus is no joke.