Long Covid

Posted by pami1 @pami1, 1 day ago

I had SARS - CoV infection in 2019. I was dx today with long Covid. Has anyone else been dx so many years after infection?

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I have seen some people diagnosed with LC years after. When did you get the symptoms of LC?

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pamil@pamil It would be very helpful if you could provide information about the medical testing you went through to reach the Long Covid diagnosis for those in this Mayo Group, who have had LC symptoms but their doctors and specialists have not been successful in reaching the conclusions your doctor achieved. Knowing if it was a specific test would be provide a pathway for others to talk to their doctors about how findings were reached. This blog group has over 3 years of stories from sufferers who still are ill and their doctors for the most part have been able to determine it was LC.

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Profile picture for pattig09 @pattig09

pamil@pamil It would be very helpful if you could provide information about the medical testing you went through to reach the Long Covid diagnosis for those in this Mayo Group, who have had LC symptoms but their doctors and specialists have not been successful in reaching the conclusions your doctor achieved. Knowing if it was a specific test would be provide a pathway for others to talk to their doctors about how findings were reached. This blog group has over 3 years of stories from sufferers who still are ill and their doctors for the most part have been able to determine it was LC.

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@pattig09 So sorry you're not feeling well.Actually,one doesn't need a dr's verification.How do you feel NOW and in the past since covid got ya.Are you feeling better or worse since covid?Sounds like long covid to me dear.Even if they 'can't find anything'...which in a lot of cases,they can't.Which is 'confusing' to patient and dr.

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Sure you didn't get reinfected again?Some people I know have had it at least 5 times.And apparently little to no symptoms....I had it twice...didn't even KNOW i had it the second time.Went in for something else. First infection....early 2020.One of the two huge life changers for me.It's almost gone...lots of water,lots of good vitamins.Lots of hoping and praying.God Bless and get well quickly.

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Profile picture for h2998sc @h2998sc

Sure you didn't get reinfected again?Some people I know have had it at least 5 times.And apparently little to no symptoms....I had it twice...didn't even KNOW i had it the second time.Went in for something else. First infection....early 2020.One of the two huge life changers for me.It's almost gone...lots of water,lots of good vitamins.Lots of hoping and praying.God Bless and get well quickly.

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@h2998sc I am not the one in my post, I was asking Pamil if they could help the LC group with details of what test led to a diagnosis. For me it took 3 years to get to get to a diagnosis and it was testing of my immune system that was the key to opening the door to solutions.

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It's considered a "diagnosis of exclusion". That means everything else has to be ruled out. There's not a test for it, per se.

This is a long article, but it is fairly recent. You may be able to glean something from it.

Updated Clinical Practice Guidelines for the Diagnosis and Management of Long COVID - PMC https://share.google/s84XpVKLiW6FWsLFP

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