Heart Rhythm Conditions – Welcome to the group

Welcome to the Heart Rhythm Conditions group on Mayo Clinic Connect.
Did you know that the average heart beats 100,000 times a day? Millions of people live with heart rhythm problems (heart arrhythmias) which occur when the electrical impulses that coordinate heartbeats don't work properly. Let's connect with each other; we can share stories and learn about coping with the challenges, and living well with abnormal heart rhythms. I invite you to follow the group. Simply click the +FOLLOW icon on the group landing page.

I'm Kanaaz (@kanaazpereira), and I'm the moderator of this group. When you post to this group, chances are you'll also be greeted by volunteer patient Mentors and fellow members. Learn more about Moderators and Mentors on Connect.

Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.

Hello! I'm new here. At age 37, I suffered a sudden cardiac arrest. I was fitted with an S-ICD. At age 40, I had a VT/VF event which required three shocks from the device. I currently take Amiodarone and Metoprolol. The Amiodarone is new since the latest incident. I was on metoprolol after my original event, but that dosage had to be cut in half because my HR was getting too low with some light headedness/dizziness once the Amiodarone was introduced.

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I am 89. Recently diagnosed with Bradycardia and Left Bundle Branch Block. (LBBB). Starting my research.

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Hello all! Happy to be part of this support group. I am a 69 year old female, a nurse, active, healthy. I have been dealing with "cardiac issues" since I was 18. I was told it was mitral valve prolapse. Then that I had "faulty wiring." My biggest problem is SVT and paroxysmal palpitations PVCs/PACs?. They crop up every so often, out of nowehere sometimes, usually for some days at a time. In addition, I suffer with anxiety, which does not help the situation. I have had many many holter monitors, echos, etc and cardiologist says benign, burden is not high. So not interested in ablation at this time. But of course, one canot help but worry. I have tried a beta blocker and a calcium channel blocker. I felt worse while on these meds. I joined this wonderful group so I can understand what other people are experiencing, and that I am not alone. I feel that people who have these issues understand how they can rob your qujality of life. So thanks for sharing!

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Profile picture for rmig @rmig

@marysharp34
3 months ago, I had an AV node ablataion adnd pacemaker inserted. Was told it was my last resort since I was going into heart failure from continuous A-fib for months. (medications did not work).
Life has been an adjustment, but at least it has given me a second chance.
Also taking Eliquis 5 mg twice a day.
This is my new normal...
I was scared, but glad I had the procedure done.

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@rmig. Good morning. My name is Scott.
I am getting ready for an ICD/pacemaker implant then av node ablation a month later.
Was your situation brady or tachycardic?
Did you have to wear a Life Vest before they did the implant?
Look forward to hearing from you.

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Profile picture for scoleo70058 @scoleo70058

@rmig. Good morning. My name is Scott.
I am getting ready for an ICD/pacemaker implant then av node ablation a month later.
Was your situation brady or tachycardic?
Did you have to wear a Life Vest before they did the implant?
Look forward to hearing from you.

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@scoleo70058 Good luck Scott. Prayers

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65 years old. Just found out i have atrial fibrillation. My mum died at 68. I canmot die. I care if husband full care if you know what I mean.\nI am very scared

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Profile picture for munchkinsmum @munchkinsmum

65 years old. Just found out i have atrial fibrillation. My mum died at 68. I canmot die. I care if husband full care if you know what I mean.\nI am very scared

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@munchkinsmum It will not kill you. Period. AF is not a lethal disorder. It can cause deterioration in your heart if it is left unmanaged for long, like years, but it IS NOT A DEATH SENTENCE! So, calmly, and with every reassurance I can give you, I a patient having had AF and having been successfully ablated, you can take a deep breath and figure out how you're going to deal with this annoyance.

Treatment for AF is only ever palliative. It is a permanent condition of the heart once you have a formal diagnosis. It is going to be treated most effectively via a catheter ablation. Meanwhile, your good doctor may want you to try metoprolol or equivalent to keep the heart's rate in check, and maybe an anti-arrhythmic drug (AAD) for the time being. Literally millions across the globe live quite well and contentedly doing only that. An ablation can come later, maybe when it's better timing for you. But do get the ablation before.....BEFORE...your heart progresses to more severe stages such as 'persistent' and 'long-standing persistent.' Ablations, the gold standard of care, must be done as early as possible because they fail more often the more advanced the disorder. Keep that in mind...no ablation necessary just yet, unless it is the best time for you. If now is the best time you'll ever have foreseeably, then maybe consult with an electrophysiologist (EP) soon. If you need to see how things unroll with your caregiving, you can probably afford to wait for several months....probably. Again, consult with a cardiologist and/or an EP, and get on their books as a patient and potential ablatee.

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I am Tom. Recently diagnosed with Left Bundle Branch Block. Seeking information.

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Profile picture for arrgh1 @arrgh1

I am Tom. Recently diagnosed with Left Bundle Branch Block. Seeking information.

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Hi, Tom — Ellen here. Was diagnosed with LBBB several years ago and life is still good with my pacemaker!
My question for you is whether your doctor told you what your left ventricular ejection fraction (LVEF) is? An important number for anyone with LBBB. Hope to hear back from you soon!

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just had an ablation for AFIB and A FLUTTER. Keeping on Amioderone for a few months so I don't know if successful or not yet. Have an ICD installed 7 years now. Anxious to see what the results are after the blanking period.

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