1. < Chronic Pain
Profile picture for joannef20

Anyone else feel Isolated and not go out due to chronic pain?

Posted by joannef20 @joannef20, Dec 23, 2025

Hello, I’m new here, I was recommended to join and interact with others who are in a similar situation as myself, I don’t go out much due to chronic pain and I feel isolated, anyone else feel the same?

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Profile picture for bealillie
bealillie | @bealillie | Jul 26 8:56am
In reply to @SusanEllen66 "@bobrogers yes, I understand. Me too. I have a Polyneuropathy, fibromyalgia, spinal stenosis, and a movement..." + (show)
Profile picture for SusanEllen66 Susan McMichael @SusanEllen66

@bobrogers yes, I understand. Me too. I have a Polyneuropathy, fibromyalgia, spinal stenosis, and a movement disorder. The Movement Disorder is Functional Neurological Disorder FND. Basically, my brain and body are not functioning correctly with each other.
FND has changed my life dramatically. My balance is very bad. I have to use a walker now. Over the last 4 months I have fallen, and hit my head twice.
I suffer with double vision, tremors, and extreme fatigue and anxiety.

The pain in my back is so bad, I can’t walk very far without experiencing extreme pain.

I keep myself busy with hobbies I started 6 years ago.
I do jigsaw puzzles, and I’m learning to paint. I started out with a small canvas and some inexpensive paint from Amazon.
I’m working on my family’s ancestry, and have found out through DNA testing that we are related to some interesting people.

I live alone, and I love my condo, but my looking at moving into an Independent Living Facility soon.

We need to keep on “trucking”…

Jump to this post

@SusanEllen66
Try re-activ physical therapy California specialize in functional neurological disorder also have online courses

REPLY
1 reply
Profile picture for rodeos
rodeos | @rodeos | Jul 26 10:40am
In reply to @newtogmg75f "Oh yes!!!! I went to doctors and as a retired RN I knew exactly what they..." + (show)
Profile picture for newtogmg75f @newtogmg75f

Oh yes!!!! I went to doctors and as a retired RN I knew exactly what they were thinking… she’s doing pretty good with being 75 -76 just over weight and neurotic about getting older…., still functioning somewhat . I started having unusual symptoms and issues in my early 50’s and it took 25 years to finally get the diagnosis clarified.. generalized myasthenia gravis.!!! Now I have too many doctors who don’t communicate with each other and too many meds and it takes all my own medical background to manage this mess. AND don’t get me started on how the insurance and pharmaceutical industries are these days. Yes there are advances in medicine to help many people but I always feel that so many people are left out and behind and can’t navigate the system. And also if I didn’t have my background I would be dead now because I was the one who read all the fine print on my medical reports and results and notified my doctors that I had 3 vessel disease and was ripe for a heart which I actually had when they started checking me out with all those scans and cardiac caths etc . Anyway now I’m isolated at home and trying to build up my strength again and trying to taper down prednisone, etc etc . Everyone hang in there and keep going as best you can !!

Jump to this post

@newtogmg75f former nurse here. I’m 64, been dealing with chronic pain and migraines since my mid to late twenties. Too many doctors, too many meds and no coordination of care except for myself. I don’t get how non-medical people survive. I had a drug interaction this past week and had to push fluids and put myself in trendelenburg position. There’s got to be change, coordination of care is critical within the multidisciplinary system we have now. More at home services and more human interaction.

REPLY
Profile picture for laurenseavertson789
laurenseavertson789 | @laurenseavertson789 | Jul 26 7:46pm
In reply to @snu "Life sure is hard. You say that most doctors fully understand....I am glad you have found..." + (show)
Profile picture for snu @snu

Life sure is hard.
You say that most doctors fully understand....I am glad you have found it that way.
In my experience, it is the complete opposite .... most have no clue of how hard it is.

Jump to this post

@snu agree with you. I have spinal Adhesive Arachnoiditis, & had it for 25 ? Years. The pain is so severe... Finally got some Dilaudid, but it doesn't help that much. I also am fused from C3 thru my sacrum & have a permanent suprapubic catheter with chronic drug resistant infections... I am often in hospital for week of IV's.... Since my kidneys, aren't great, and i am so drug resistant, i wonder how long i'm going to last. I am alone, no family. Know there must be some empathetic docs, but i never seem to get one. Lot of them don't know about my DX, or just tell me to take steroids & since i was an RN, they let me doctor myself, or i am stuck going to extremely over crowded ER's which are terrible here, in Phoenix area Think the empathetic docs have all left this part of the country, too many people & not enough doctors

REPLY
2 replies
Profile picture for snu
snu | @snu | Jul 27 9:19am
In reply to @laurenseavertson789 "@snu agree with you. I have spinal Adhesive Arachnoiditis, & had it for 25 ? Years...." + (show)
Profile picture for laurenseavertson789 @laurenseavertson789

@snu agree with you. I have spinal Adhesive Arachnoiditis, & had it for 25 ? Years. The pain is so severe... Finally got some Dilaudid, but it doesn't help that much. I also am fused from C3 thru my sacrum & have a permanent suprapubic catheter with chronic drug resistant infections... I am often in hospital for week of IV's.... Since my kidneys, aren't great, and i am so drug resistant, i wonder how long i'm going to last. I am alone, no family. Know there must be some empathetic docs, but i never seem to get one. Lot of them don't know about my DX, or just tell me to take steroids & since i was an RN, they let me doctor myself, or i am stuck going to extremely over crowded ER's which are terrible here, in Phoenix area Think the empathetic docs have all left this part of the country, too many people & not enough doctors

Jump to this post

@laurenseavertson789
I am soooo sorry that you are are going through this. The physical and mental pain you are enduring is awful. I live in Canada and they deal with such situations by offering the MAID PROGRAM, (medical assistance in death )! Many people are taking that way out. Such a sad thing that there are so many people in chronic pain, with unsympathetic health care practicioners.
I feel for you.sending 🤗 hugs

REPLY
Profile picture for mister1
mister1 | @mister1 | Jul 27 9:43am

I am new here. I have only written once before. I was an autopsy assistant / embalmer for a coroners office, then managed funeral homes / crematoria's for 30 + yrs then ended my career as a donation coordinator for a tissue bank. I have spent most of my life on call, up long nights and busy every holiday. I have spent most of my life in service to others at they’re worst times and now with Huntingtons disease find myself needing help. I have to say I preferred it the other way around. I was never really sick and was “Never” late to a funeral! Now just a shower and I’m done. They have tried several meds for my pain the worst was Methadone. I mean it must have worked, because I lost two weeks. I don’t remember a thing. And I’m so thankful that at least they keep trying. Love my pain doctor, he’s up beat and seems to actually care. But I hate having to ask for help. Not just because I’m male, haha! It’s just the small things, I mean opening any kind of container my fingers won’t work, my arms just decide to throw whatever I’m holding and I feel like a wiggle worm. But, at least I’ve kept my humor. Here’s to a good day to all ❤️

REPLY
Profile picture for abc124
abc124 | @abc124 | Jul 28 12:43pm

Yes I have chronic pain in my neck and shoulder.
It stops me from going out because I feel very tired.had a dexs scan and I have osteoporosis. It also affects my cognitive thinking.

REPLY
Profile picture for martwanda41
martwanda41 | @martwanda41 | Jul 29 7:00am

It hurts worse with any activity. Going to doc will keep me down for a couple days. My doc gives me tramadol every 5 hours and hydrocodone at night. It barely phases it. Better than nothing. I mentioned Mayo Clinic has good ideas. He said go there then. I cry a lot. Now it’s in my tailbone too. Can’t walk stand or sit.

REPLY
Profile picture for htolan
htolan | @htolan | Jul 29 5:12pm

I am home bound except for medical appointments. It’s horrible. I keep trying to improve. I had a huge back surgery (T10 to base of spine fusion) 11 months ago and I have no back pain now. Unfortunately, I have awful leg pain, neck pain and shoulder pain. I am depressed and find limited joy in life.
I have a wonderful husband who takes great care of me. I just didn’t plan to spend our retirement this way.
I hear your pain and hope our lives improve. Best wishes.

REPLY
Profile picture for htolan
htolan | @htolan | Jul 29 5:15pm
In reply to @laurenseavertson789 "@snu agree with you. I have spinal Adhesive Arachnoiditis, & had it for 25 ? Years...." + (show)
Profile picture for laurenseavertson789 @laurenseavertson789

@snu agree with you. I have spinal Adhesive Arachnoiditis, & had it for 25 ? Years. The pain is so severe... Finally got some Dilaudid, but it doesn't help that much. I also am fused from C3 thru my sacrum & have a permanent suprapubic catheter with chronic drug resistant infections... I am often in hospital for week of IV's.... Since my kidneys, aren't great, and i am so drug resistant, i wonder how long i'm going to last. I am alone, no family. Know there must be some empathetic docs, but i never seem to get one. Lot of them don't know about my DX, or just tell me to take steroids & since i was an RN, they let me doctor myself, or i am stuck going to extremely over crowded ER's which are terrible here, in Phoenix area Think the empathetic docs have all left this part of the country, too many people & not enough doctors

Jump to this post

@laurenseavertson789

REPLY
Please sign in or register to post a reply.