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Profile picture for laurenseavertson789 @laurenseavertson789

@snu agree with you. I have spinal Adhesive Arachnoiditis, & had it for 25 ? Years. The pain is so severe... Finally got some Dilaudid, but it doesn't help that much. I also am fused from C3 thru my sacrum & have a permanent suprapubic catheter with chronic drug resistant infections... I am often in hospital for week of IV's.... Since my kidneys, aren't great, and i am so drug resistant, i wonder how long i'm going to last. I am alone, no family. Know there must be some empathetic docs, but i never seem to get one. Lot of them don't know about my DX, or just tell me to take steroids & since i was an RN, they let me doctor myself, or i am stuck going to extremely over crowded ER's which are terrible here, in Phoenix area Think the empathetic docs have all left this part of the country, too many people & not enough doctors

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Replies to "@snu agree with you. I have spinal Adhesive Arachnoiditis, & had it for 25 ? Years...."

@laurenseavertson789
I am soooo sorry that you are are going through this. The physical and mental pain you are enduring is awful. I live in Canada and they deal with such situations by offering the MAID PROGRAM, (medical assistance in death )! Many people are taking that way out. Such a sad thing that there are so many people in chronic pain, with unsympathetic health care practicioners.
I feel for you.sending 🤗 hugs