Does your diagnosis of Fibro make you upset?
**Trigger Warning: Mental Illness and Depression**
While I'm relieved that i finally know what's causing all the issues I've been having for months, I am depressed too. I already have 4 mental illnesses (please don't judge me, I'm not a psycho) plus Autism and having no cartliage in my knees. But I just feel like "why can't I have a "normal" life like most people?" I feel like a prisoner to my own body. Fibro is just another thing I don't want and of course don't need. I feel defective. Does anyone else relate or understand?
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I was diagnosed after 5 years of struggles. I like you have found other things on the way. I have known GORD, weak esophagol motility ,Radiculopathy, LCIS. I did have malaria and lost a week of my life being drugged up to the hilt in India and then severe gastroenteritis a few times in my 20's and I don't think that did me any favours. I eventually found myself in front of a lovely pain consultant who knew exactly what it was after reading my extensive medical notes.
I wasn't sure whether to laugh or cry. How could someone know so quickly when others were scratching their heads. I am sat here exhausted in pain, well you of course get it.
At first I was glad it had a label but as the time has gone on the strong me saying "it's the fibromyalgia it will pass " routine has gone. I also feel like a prisoner in my own body as before all this I could do anything. I too have got depressed or low and have bursts of shouting and swearing, I am thinking it could have been side effects of the tablets but on days when I spend most of the morning sleeping and still feeling knackered it does get you down. Plus this label covers everything even when there's other things going on. I feel defective but I try and live the new me and still go to church ( to pray for all that swearing and frustration!) and I am still a self employed violin teacher.
I am sorry you feel how you feel, I always thought I could be strong, however we can be strong on better days and we are allowed to feel rubbish as well. As for the mental health don't let anyone judge you, it's alot on your plate , fibromyalgia affects each and every one of us in different ways plus being on the meds is another story all together....I have had hallucinations and speech problems on the amtripuline and pregabalin.....
Take each day as it comes and be kind to yourself, live within your new capabilities and try to look forward not back...
Many blessings from a fellow fibromyalgia sufferer.xx
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3 ReactionsAbsolutely. No judgement whatsoever.
This is a normal feeling. You are not alone. Many (probably all) of us feel this. I certainly do.
You are grieving the idea that you had about what your life would look like. All the stages of grief are normal.
It's okay to be angry, it's okay to feel sad, its okay (but probably not effective long-term) to try to control the symptoms away.
Ideally, you work towards building a new idea of your future and can accept it. Obviously, that's easier said than done.
If you don't have a therapist who can support you, finding one is a good start. You need someone (or two people) who understand(s) grief counseling and CBT for the central sensitization.
Also, when you look at other people who live with chronic illness or visible physical differences that affect the way they move through life, do you see them as defective? If not, why, and how is that different from how you view yourself? Most of us are more negative towards ourselves than towards others - try giving yourself some of that grace.
Remember: You feel what you feel. The feelings are not bad - they are messages. However, your fibromyalgia emphasizes negative emotions as well as physical sensations, which is why things like CBT and other mental techniques are so important.
You're not alone, you are having a perfectly normal response, and we're here for you.
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1 ReactionAmen to all that! You're not alone, many of us are facing a different journey now and we are all here for you. It's hard , never easy but there is support and many of us are trying to adapt and accept a new life with fibromyalgia. Yes we do mourn our old selves before this dreadful chronic illness came and we totally understand and definitely don't judge .It's mentally draining.....Fibromyalgia is to blame not you , plus as said previously the tablets don't help. Everyone who has to deal with daily pain knows the struggles you're going through, please be kind to yourself and celebrate little victories. You have had the courage to write on here for starters....
Many blessings.xx
@jnr11
Thank you so much for this response. Actually I finished an Intensive Outpatient Program in May, and am taking part in their alumni sessions 4 days a week. Fortunately, i found a group leader who I love and is so great to work with. And I found another group leader for 2 other groups and she's great too.
My new therapist who is not from the place where i am doing this, is trained in both CBT and DBT. She gave me a relaxation technique to use to calm myself down, and with the exception of last night, it's like sorcery lol. It's the tense a body part and slowly count backward from 10-1 and allow the muscles to relax. By the time I hit 6 or 5, it's relaxed. I texted her after I saw my Doctor and got the Diagnosis, so she knows ahead of this week's appointment. She replied that we will process it together.
Thanks so much