Diagnosed with Atypical Parkinson's? What does this really mean?

Posted by larry68 @larry68, Jul 7 9:30am

I have been diagnosed as having Atypical Parkinsons.Is that something that goes away for a month or so and then comes back for a month or so or do i need to find a different Neurologist?

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Profile picture for larry68 @larry68

after a lot of research i did discover that because of my age i won't have to deal with it for more than 5 more years.

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@larry68 Excuse me but how old are you?

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@larry68 Ouch! Not the answer I was hoping for. I too am 70 and, while I am not afraid of going, I still have stuff to do. Who knows, by getting PD, we proved we are not average. 🙂

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Profile picture for goatgirl28 @goatgirl28

@larry68 Ouch! Not the answer I was hoping for. I too am 70 and, while I am not afraid of going, I still have stuff to do. Who knows, by getting PD, we proved we are not average. 🙂

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@goatgirl28 I ain't scared of going.I just don't want to be a burden.I have CBD Atypical Parkinsons.I guess we definitly are not average.I have a lot of stuff to do and only a few years to get it done.

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Profile picture for bmfoster @bmfoster

@raybepko
Your honesty is refreshing and right on the money. I DO try and stay positive, but there are lots of negatives and obstacles to maneuver around on a daily basis. It is what it is and I frequently remind myself that - pain is inevitable, but suffering is optional. I try not to stay in any degree of self-pity for long - it doesn't accomplish anything and only makes me fearful and miserable. I've learned what I MUST do to stay upright - this summer heat will lead to a face plant if I don't stay hydrated or try to do any activities that require exertion if its 85 degrees or higher outside. I've told some friends about my problems and they know if they ever find me "down" to put my feet in the air - don't start CPR:)) Gut issues and orthostatic hypotension are the worse symptoms to date and my gait and voice issues are running a close second. Trying to live one day at a time. Hang in there buddy - we just have to do the best we can. B

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@bmfoster Thanks. Hang in there we must. And will.

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Definitely need to see a Movement Disorder Specialist Neurologist, not a general Neurologist

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