Heard of having a seizure after colonscospy? Need to have colonoscopy.

Posted by royanthony @royanthony, Jul 17 9:44am

I've done some research that resulted in some people having a seizure after the procedure. One person had two. They said it was rare, but did confirm that it can happen. They recommended speaking with an epileptologist before having the colonoscopy. Has anyone or someone you know had such an experience? I need to have it done, but I'm waiting to speak with my Epo doctor in early August. Thanks

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@royanthony
How interesting to know that — it doesn't surprise me, as the gut is known to be our second brain!
I had to do this procedure together with an endoscopy back in 2024. Checking my seizure diary, I had it done on the 4th of October and had no seizures that entire month.
But I remember that my neurologist at the time took some extra care around these two procedures, asking me to prepare for them at the hospital instead of at home. Please do talk to your epileptologist before going through this procedure.
Researching the correlation between seizure incidence and colonoscopy, it seems there isn't yet a large body of research studying epilepsy patients specifically undergoing colonoscopy — but there does appear to be a documented pathway connecting the two, mostly through the bowel preparation process rather than the colonoscopy itself. So, it would be especially interesting to discuss with your doctor which bowel preparation solution is safest for you.
Sharing here one scientific paper I could find on it:
https://pubmed.ncbi.nlm.nih.gov/15812590/
Have you had access to another scientific paper showing a strong correlation between colonoscopy and seizures?
Chris

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I have had two Colonoscopies without incident, just made sure they had my medical history.

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Chris does a great job of explaining pre-procedure tasks. My topic above was intended to learn if others' had seizure issues related to what we have to drink before the procedure. So thanks Chris.

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Profile picture for Chris Gautier, Volunteer Mentor @santosha

@royanthony
How interesting to know that — it doesn't surprise me, as the gut is known to be our second brain!
I had to do this procedure together with an endoscopy back in 2024. Checking my seizure diary, I had it done on the 4th of October and had no seizures that entire month.
But I remember that my neurologist at the time took some extra care around these two procedures, asking me to prepare for them at the hospital instead of at home. Please do talk to your epileptologist before going through this procedure.
Researching the correlation between seizure incidence and colonoscopy, it seems there isn't yet a large body of research studying epilepsy patients specifically undergoing colonoscopy — but there does appear to be a documented pathway connecting the two, mostly through the bowel preparation process rather than the colonoscopy itself. So, it would be especially interesting to discuss with your doctor which bowel preparation solution is safest for you.
Sharing here one scientific paper I could find on it:
https://pubmed.ncbi.nlm.nih.gov/15812590/
Have you had access to another scientific paper showing a strong correlation between colonoscopy and seizures?
Chris

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Your suggestion was great. My procedure was scheduled for 1:00 pm today. Yesterday, at 3:00 pm they called and asked if they could change it to 9:00 today. With courtesy, I accepted. But then I thought about the interaction of seizure medication time and their new (what I consider inconsiderate business practice) procedure time, they wouldn't let me use the 1:00 pm. I went to the doctor's office as committed, but their questions were strange. They should have known the answers prior to them asking. They circled answers to my questions until I finally asked why the time change? The doctor said she had a commitment she just couldn't cancel. It seems once they thought more about working on me with my seizure condition, they decided they didnt want me as a patient. I did seek my neurosurgeon's opinion and he had no problem with the 1:00 pm time frame, but again, that was before this 9:00 a.m. change. I think it was a very poor business practice. Prejude again ?

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Profile picture for royanthony @royanthony

Your suggestion was great. My procedure was scheduled for 1:00 pm today. Yesterday, at 3:00 pm they called and asked if they could change it to 9:00 today. With courtesy, I accepted. But then I thought about the interaction of seizure medication time and their new (what I consider inconsiderate business practice) procedure time, they wouldn't let me use the 1:00 pm. I went to the doctor's office as committed, but their questions were strange. They should have known the answers prior to them asking. They circled answers to my questions until I finally asked why the time change? The doctor said she had a commitment she just couldn't cancel. It seems once they thought more about working on me with my seizure condition, they decided they didnt want me as a patient. I did seek my neurosurgeon's opinion and he had no problem with the 1:00 pm time frame, but again, that was before this 9:00 a.m. change. I think it was a very poor business practice. Prejude again ?

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@royanthony
Hi Roy,
Thanks for the update. I'm sorry to hear you went through this!
I don't know that this was necessarily prejudice against your epilepsy specifically — last-minute schedule changes can happen in medical practices for all kinds of reasons, and the doctor did give you a direct explanation when you asked.
But even so, I still feel there was a real lack of care here, given the timing of your seizure medications. In my opinion, any change like that should be checked with the doctor who treats your epilepsy before the exam time is altered.
I'm not sure I understood you correctly — did you end up going through with the colonoscopy at the changed time?
Chris

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