Am I coddling?

I remember when I was having trouble there was no name for it, and I was called many names by family, friends, and even medical people.. I was lying. I was faking it and I could hardly put 1 foot in front of the other..
To me, your sister sounds very judgmental and very self-centered.
She don’t know or understand what your daughter is going through. Give her the best support you can and encourage her to learn about fibromyalgia Google is a good place to start as well as Google scholar Google scholar has more technical information and no false advertisement and so much.
And you need to also take care of yourself so you don’t get rundown
I wish the very best for you and your daughter during this very difficult time

Hello,
Yup, I've been through the, You're a faker. Attention seeker. Etc. Etc. too! It's not fun. You have nothing to back yourself up. You usually look just fine! And, you hear, "Oh, Come on. It's can't be THAT bad!" Well it CAN!
It might help to see if there is a support group nearby. I know I would be even doubting myself off and on...maybe this WAS all in my head...Others going through the same thoughts and feelings and PAIN and exhaustion and fog...and...and...AND will help her through the tough times. Because, there will be some very tough times with your sweet daughter looking like there is absolutely NOTHING wrong with her, at all!

Just tell your sister to....Well no, that wouldn't be nice. But you could tell her to Google it. There are so many invisible illnesses or conditions out there now: Autism, mental illness like manic depression, cancer, heart disease, our families all have something. You would think we would be kinder to people close to us who need our understanding. There will be times, however, that feeling like a pile of wet grimy newspaper or not your daughter will have to get on with life and "Do it anyway." She still will have to learn how to carry on through the times when she must show up for herself until she is able to let everything go but what she can manage at the time.

And you, Dear loving Mom, as minnesota10 said, you take care of yourself...It's the "Put the mask on yourself first rule" ya know? And try to keep things as light as you can about it with her. I have a couple of friends and my sons who can kid me (they know when and when NOT to) about sleeping in the afternoon or was my head on straight today...so that I know I am still "Okay."

Mamabear, I think you are a wonderful Mom! I have had Fibromyalgia for 31 years and it's a very hard thing to live with. My faith in the Lord is what keeps me going and my wonderful family. Your daughter needs you, but, as posted above, do take good care of yourself.

I have 2 close friends that have Fibromyalgia and we talk and pray for each other. We understand each other.

It's a very misunderstood malady....some folks don't (doctors included) believe in it. Why would anyone want to pretend they have pain & fatigue all over and other symptoms for attention? Makes no sense. My primary doctor told me Fibromyalgia was brutal. He is right.

Praying for you and your daughter right now. Blessings & Prayers....

Never do we need tough love. Fibro is hard to understand cuz the population is so small folks usually don’t hear about it. And we always look good on the outside. We are usually in some pain any given day. Go to the American Fibromyalgia Syndrome Association website. They have oodles of articles and studies. After you and your daughter read this forward a few to your family. Know that you are saving your daughter her precious energy for other activities that will enrich her life. Mothers know and you know best. Hang in there.

Don’t believe you will ever regret giving encouragement and support to your daughter.
Knowing someone else is trying to understand is huge!
You may also want to offer to join her in some kind of activity - walking; craft; getting out and physically active in whatever degree both can handle.
Don’t let others non thinking comments stay with you.

Bless you for blessing and supporting your daughter. If anyone gives me any kind of understanding or support it certainly helps the depression and my own outlook on this illness. If it is worth it to you, to inform this relative or anyone else about your daughter’s condition as I commented before I found testimonies on YouTube of people describing their fibromyalgia symptoms and struggles. I found one that was sincere, easy to understand, and described my own feelings and symptoms. And one that wasn’t to long. I sent it to close family members that mattered to me. I received very positive responses mostly “I had no idea what you were going through “. No negative ones. Just a suggestion. Peace and love.

My husband understands and gives time, care, cuddling and anything else I need. I said CUDDLING not coddling. During my extreme pain I need any and all care possible. Even keeping my ice drink I love always at my side. Now, one could say ‘get it yourself, “. Just managing to get out of bed or chair REQUIRES coddling!
Along with the pain, the exhaustion can afflict my mental well being and
my mental exhaustion as well. Finding the energy and ABILITY to “get my own drink” can be so difficult it needs a cuddlier!
Fibromyalgia is an extremely difficult to diagnose Very difficult to manage as well. I truly believe that no one can understand fibromyalgia unless they live in our skin. Your daughter needs to become aware of the condition and seek to understand.
God bless your daughter who seeks God’s comfort and coddling. Thanks to you, Mom.

@judyingenes

I have invisible disabilities and it drives me insane that I have to prove it. One of the things that makes my blood boil when it comes to having Autism, is how many people think they have a right to tell us how we feel or are being treated. And the celebrities and criminals are using Autism as what I call "a disability du jour". It's being used as an excuse to blame poor behavior and crimes on. I've had people say to me "you don't look Autistic." REALLY? We shouldn't have to be made to prove our disabilites and illnesses to others.

@harrie123

I know the feeling of trying to find energy enough to go get a drink or food. My Doctor just diagnosed me with Fibro (thanks to all of you on these message boards for helping me out.) One of the things I told her was there are nights where i can barely get off the couch to make myself dinner, and I choose things that aren't totally healthy but i don't have the energy to make anything else. And yes that sometimes means toast or cereal.

So sorry your journey has just begun. For that I am so sorry
Harrie