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Anyone else feel Isolated and not go out due to chronic pain?

Posted by joannef20 @joannef20, Dec 23, 2025

Hello, I’m new here, I was recommended to join and interact with others who are in a similar situation as myself, I don’t go out much due to chronic pain and I feel isolated, anyone else feel the same?

Interested in more discussions like this? Go to the Chronic Pain Support Group.

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staceywood | @staceywood | 7 hours ago
In reply to @rt061069 "@joannef20 Unless you live with constant that you don’t even get a few hours a day..." + (show)
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@joannef20

Unless you live with constant that you don’t even get a few hours a day of Chronic Pain that is over a seven you’re not living. I’m tough I’ve had migraines since since my 20s and kind of fibromyalgia and mild gut pain but now the central medial abdominal pain syndrome in my gut down the middle. Nothing touches it except for enough fentanyl at the ER and they won’t do it people after time who are your family and friends gonna give up on you because you start isolating when you’re this sick and they’re tired of hearing there’s no good news. Nobody likes hearing that it’s hard on my spouse to not yell due to the pain and pushes my kids away, and my friends are kind of forgetting me because I’ve been sick too long and I can’t do anything with them and they’re living. They’re full lives. I don’t make Facebook because it’s just a show off thing and I don’t need to see people loving in life and taking a vacations and doing all the stuff that I can’t do anymore I don’t need to add to my depression

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@rt061069 look up SMAS, MALS, NCS disgnoses.

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snu | @snu | 2 hours ago

Oh girl! I feel your pain. I feel exactly the same way. When I do go out, it's hard to socialize and be actually joyful because of pain....the pain that no one else can feel or completely understand how it can be so bad.
I am psyching myself up with strategies to tolerate a 2 day away from home family reunion with lots of driving.
Deep breathing and meditative mental imagery are some of my strategies. It may be the last time I see my 95 year old father (in law) so I have to be really strong. I am doing it for him as I am a daughter to him.

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rt061069 | @rt061069 | 2 hours ago
In reply to @staceywood "@rt061069 look up SMAS, MALS, NCS disgnoses." + (show)
Profile picture for staceywood @staceywood

@rt061069 look up SMAS, MALS, NCS disgnoses.

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@staceywood Tk you. Trying the low dose Cleveland clinic a new protocol, but it’s not helping to reset my brain with the pain I’ve been checked out for I guess two of the three things you mentioned but my CT is an ultrasound an MRI colonoscopy upper endoscopies even explored to her surgery. they didn’t find anything and I just pain keeps getting worse this year it’s basically if I’m not sleeping in which last night was horrible trying to fall asleep with the level nine you just I had to take 300 mg of Seroquel. It’s really hard to be in pain 24 seven you wake up and you know quickly. The pain turns on like a light switch and even though I took 30 g of methadone last night and finally fell asleep. I wake up to level 89 pain.

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sare | @sare | 1 hour ago

Me, everyday. Herniated L4-L5 Nov 2022. Had spine surgery in Oct 2023, that was needed at Cleveland Clinic. My right leg was paralyzed, toes pointing straight out, couldn't move or bend my leg at knee, turned purple down to my toes, and they told me to go pt. How? I couldn't move without screaming. 3 hospital systems in Ohio: UH, Metro, and Cleveland Clinic, all turned me away for a year. I thought I would loose my leg from the knee down and the sciatica...omg I was in hell. Finally I went back to CClinic I didn't know what else what to do, what my options were, nothing. Surgery failed. It got rid of my horrific sciatica for 2 yrs but now it's back and my pain in my back is back too. I'm back on a cane or walker. I don't go anywhere unless I have to. It's horrible. I lost my life because my spine is giving. I get it. I had my own business and working all the time raised my son by myself... Nope. Can't work. They won't even give me a handicap sign for my vehicle which would really help. It's a crap shoot here for this type of injury. I'm looking into minimally invasive spine centers now around the U.S. I now know I have options.

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sare | @sare | 1 hour ago
In reply to @snu "Oh girl! I feel your pain. I feel exactly the same way. When I do go..." + (show)
Profile picture for snu @snu

Oh girl! I feel your pain. I feel exactly the same way. When I do go out, it's hard to socialize and be actually joyful because of pain....the pain that no one else can feel or completely understand how it can be so bad.
I am psyching myself up with strategies to tolerate a 2 day away from home family reunion with lots of driving.
Deep breathing and meditative mental imagery are some of my strategies. It may be the last time I see my 95 year old father (in law) so I have to be really strong. I am doing it for him as I am a daughter to him.

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@snu
Sorry wrong reply to wrong person. I'm new
I won't drive anywhere unless I have to. It hurts too much and then I get worse. Good luck hunny!

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