@marcd2k
I can definitely identify with what you are going through. What caught my attention in your note, was the fact that you have right sided pain. I too have the same issue. I think I had some type of muscle damage after using my body outside in extreme heat in the summer, plus I have Neuropathy due to TS – HDS antibodies complicated further by MGUS and SIADH. I believe that this aggravates the right sided muscle issue. My pelvis is completely out of whack due to breaking my femur in an accident in 2012
( poor repair) & now it’s affecting my back, piriformis muscle, as well, as everything is connected.. I too have tried acupuncture, Physical Therapy, and steroid injections, other different medication’s and medical direction . I’ve been in and out of the hospital three times now for low serum sodium. I was taking hydrocodone for pain, but the complications for that began to outway the relief for the pain. I am on Lyrica and Ambien so I can sleep, IVIG infusions and high blood pressure medication’s . Don’t feel that you are alone as so many of us are in chronic pain and our daily lives are very negatively affected. I am also seeing a psychologist who specializes in helping you manage pain. The trail of days spent in the doctors office is endless, but I still have hope in finding the right doctor eventually and trying to enjoy what I still can do despite the pain. I have to rest frequently and be especially careful avoiding hot days outside. I get up early at daylight and head outside till about 8:30 due to very hot days in southern Illinois. I’m inside the rest of the day, and do not socialize much if at all . I go nowhere as it just always makes me pay a price. We have 5 acres, horses, dogs, cats. They are all a must to take care of and maintain. My husband is very supportive and I know if I stay active to the best of my ability each day, I am doing my best. I struggle daily with trying to be optimistic and realize that I am lucky to be in my 70s before all of this cascaded. I keep telling myself that the “practice of medicine”… it’s just that. The doctors try to do to the best of their ability and may or may not not do it right. I have faith, as time goes on and they have more knowledge accessible to them for our conditions, I will find some relief.. I keep on plugging away, despite the isolation and changes in my life. Friends, withdraw, family does not understand, even though they would like to, and life goes on.