lung surgery against mac infection

Posted by alks @alks, Jul 9 11:14am

how successful lung surgery against mac infection

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

@alks Welcome to Mayo Connect. You might like to join this recent discussion about lung surgery for MAC:
https://connect.mayoclinic.org/discussion/macrobacterium-abscessus-in-lungs/
What other treatments have you tried?

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I HAD a 3 cm Cavitary mass from a newly diagnosed NTM infection .
I presented with no symptoms at all and it just showed up as an incidental finding on chest x-ray.I was treated with 5 antibiotics ( one I.V through a PIC line ..that I was only able to tolerate a week .I had contacted a fantastic thoracic surgeon here at NYU ( Dr Robert Cerfolio)who robotically removed my mass !
My 3 month post surgery C.T was negative and I remain asymptomatic!

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Profile picture for visions63 @visions63

I HAD a 3 cm Cavitary mass from a newly diagnosed NTM infection .
I presented with no symptoms at all and it just showed up as an incidental finding on chest x-ray.I was treated with 5 antibiotics ( one I.V through a PIC line ..that I was only able to tolerate a week .I had contacted a fantastic thoracic surgeon here at NYU ( Dr Robert Cerfolio)who robotically removed my mass !
My 3 month post surgery C.T was negative and I remain asymptomatic!

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@visions63 Wow, your pulmonologist decided to do surgery for you?

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No,I decided that I couldn’t have a quality of life on antibiotics that were getting me so sick that I couldn’t leave my house ,so I contacted a lung surgeon and asked if my cavitary mass was operable …Against my pulmonologist’s advise ,I had a robotic lung resection with a surgeon who was part of the NTM team .
I now have no more mass and no symptoms.!!

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Profile picture for visions63 @visions63

No,I decided that I couldn’t have a quality of life on antibiotics that were getting me so sick that I couldn’t leave my house ,so I contacted a lung surgeon and asked if my cavitary mass was operable …Against my pulmonologist’s advise ,I had a robotic lung resection with a surgeon who was part of the NTM team .
I now have no more mass and no symptoms.!!

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@visions63 have you experienced any shortness of breath since surgery? Was it a lobectomy or just removal of the cavity?

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Profile picture for visions63 @visions63

No,I decided that I couldn’t have a quality of life on antibiotics that were getting me so sick that I couldn’t leave my house ,so I contacted a lung surgeon and asked if my cavitary mass was operable …Against my pulmonologist’s advise ,I had a robotic lung resection with a surgeon who was part of the NTM team .
I now have no more mass and no symptoms.!!

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@visions63
I also had MAC and was on 3 antibiotics for a year and a half. During that time I only had 1 neg sputum test. I then had a PIC line put in and was on 2 antibiotics 3x per day for 4 months. Finally had another negative test. I still had quite a few cavities , one that was especially large. My pulmonologist referred me to a lung surgeon because he was worried that cavity was the host for the MAC. The surgeon agreed and recommended robotic surgery as well. That was Aug of 2024. All of the biopsies came back negative. I get a CT evey 6mths, so far no more MAC. I do have Bronchiectasis, so I still cough up a lot of sputum, but I will take that over being on antibiorics non stop. Stay healthy!

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Profile picture for visions63 @visions63

No,I decided that I couldn’t have a quality of life on antibiotics that were getting me so sick that I couldn’t leave my house ,so I contacted a lung surgeon and asked if my cavitary mass was operable …Against my pulmonologist’s advise ,I had a robotic lung resection with a surgeon who was part of the NTM team .
I now have no more mass and no symptoms.!!

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@visions63 wow, you are so brave. How many hours for the surgery and recovery? so glad you are feeling better.

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Profile picture for lbabbitt @lbabbitt

@visions63
I also had MAC and was on 3 antibiotics for a year and a half. During that time I only had 1 neg sputum test. I then had a PIC line put in and was on 2 antibiotics 3x per day for 4 months. Finally had another negative test. I still had quite a few cavities , one that was especially large. My pulmonologist referred me to a lung surgeon because he was worried that cavity was the host for the MAC. The surgeon agreed and recommended robotic surgery as well. That was Aug of 2024. All of the biopsies came back negative. I get a CT evey 6mths, so far no more MAC. I do have Bronchiectasis, so I still cough up a lot of sputum, but I will take that over being on antibiorics non stop. Stay healthy!

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@lbabbitt …surgery was the best way to go …..antibiotics never get rid of it and who wants to live like that with a PIC line …..great that your Pulmonologist recommended that !!!

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Profile picture for sweethighland @sweethighland

@visions63 wow, you are so brave. How many hours for the surgery and recovery? so glad you are feeling better.

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@sweethighland…surgery was about 1 1/2 -2 hrs of surgery .My surgeon texted my sister during the whole procedure..Usually people are discharged the next day ,but I have some cardiac issues ,so I stayed a little longer .
Recovery was about 2 weeks with texting my vitals to my surgeon every day .
I made sure that I walked everyday which is really important!
Best decision I’ve ever made was to have this surgery and have a life !!

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Profile picture for visions63 @visions63

@sweethighland…surgery was about 1 1/2 -2 hrs of surgery .My surgeon texted my sister during the whole procedure..Usually people are discharged the next day ,but I have some cardiac issues ,so I stayed a little longer .
Recovery was about 2 weeks with texting my vitals to my surgeon every day .
I made sure that I walked everyday which is really important!
Best decision I’ve ever made was to have this surgery and have a life !!

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@visions63 so they cut the infection out ? Is that correct.
You say the biopsy was negative so was the infection already gone before surgery .?
Sorry I’m a little confused

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