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lung surgery against mac infection
MAC & Bronchiectasis | Last Active: Jul 13 6:33pm | Replies (23)Comment receiving replies
No,I decided that I couldn’t have a quality of life on antibiotics that were getting me so sick that I couldn’t leave my house ,so I contacted a lung surgeon and asked if my cavitary mass was operable …Against my pulmonologist’s advise ,I had a robotic lung resection with a surgeon who was part of the NTM team .
I now have no more mass and no symptoms.!!
Replies to "No,I decided that I couldn’t have a quality of life on antibiotics that were getting me..."
@visions63
I also had MAC and was on 3 antibiotics for a year and a half. During that time I only had 1 neg sputum test. I then had a PIC line put in and was on 2 antibiotics 3x per day for 4 months. Finally had another negative test. I still had quite a few cavities , one that was especially large. My pulmonologist referred me to a lung surgeon because he was worried that cavity was the host for the MAC. The surgeon agreed and recommended robotic surgery as well. That was Aug of 2024. All of the biopsies came back negative. I get a CT evey 6mths, so far no more MAC. I do have Bronchiectasis, so I still cough up a lot of sputum, but I will take that over being on antibiorics non stop. Stay healthy!
@visions63 wow, you are so brave. How many hours for the surgery and recovery? so glad you are feeling better.
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@visions63 have you experienced any shortness of breath since surgery? Was it a lobectomy or just removal of the cavity?