HFpEF

Posted by maconsulting2 @maconsulting2, Jan 14, 2025

Hope I’m in the right group! I was recently diagnosed with this condition. I’m interested in hearing from others about how this diagnosis impacts one’s life. What is your experience of its progression?

Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.

Profile picture for ejbb @ejbb

@diane987654321 When I was diagnosed in December 2025 with HFrEF (20-25), I was told it is important for me to exercise but even if I just make a bed by myself, I get out of breath and my heart rate increases. Walking too fast from a parking lot to the grocery store entrance gets me dizzy sometimes. I used to walk 2.5 miles 5 days a week with my neighbor but can't anymore. Very depressing. I am hoping to start cardio rehab in a couple of weeks to see if I can exercise under medical supervision and then start on my own at home with a treadmill. I have an appointment with EP at Mayo Phoenix on September 2nd to discuss ICD/Pacemaker implant because of my HFrEF and LBBB. So helpful to have others to communicate with who understand what we are going through!

Jump to this post

@ejbb I empathize with you about feeling negatively about how even the smallest exertion affects you. I miss my walks with my dogs, being able to clean my whole house quickly, gardening for hours. I get upset when I dwell on all that, so I try to focus on what I can do. It is hard and I am tired of my body falling apart.

REPLY
Profile picture for linda @lindakbe

I was diagnosed at Mayo Clinic, a couple of years ago, with HFwpef. They're thinking it was due to chemotherapy 16 years ago. Now they're regularly testing anyone on my particular chemo drug regimen with this specific exercise test to uncover HFwpEF long term heart damage. But they didn't know that 15 years ago, so I was undiagnosed for a long time. My cardiologist put me on jardiance, metapropol, baby aspirin, and spironolactone. I went to cardiac rehab for six months, and graduated to seeing a Mayo physical therapist to manage exercise challenges.
Especially in this heat, and also having asthma, I am really discouraged.

Jump to this post

@lindakbe I could not handle Jardiance with Entresto and Metoprolol and Spironolactone. You are fortunate you can if they are all helpful to you. It is definitely difficult to navigate all the drugs they want you to take. Not to mention trying to exercise when you HFrEF. Did cardiac rehab help you? I am starting in a couple of weeks. Thank you in advance.

REPLY
Profile picture for ejbb @ejbb

@lindakbe I could not handle Jardiance with Entresto and Metoprolol and Spironolactone. You are fortunate you can if they are all helpful to you. It is definitely difficult to navigate all the drugs they want you to take. Not to mention trying to exercise when you HFrEF. Did cardiac rehab help you? I am starting in a couple of weeks. Thank you in advance.

Jump to this post

@ejbb The cardiac rehab team at Mayo is phenomenal....
empathetic, motivated, knowing exactly how to guide you. And.... they have a beautiful sense of humor. Finding out you have HF is overwhelming and scary. The cardiac rehab team reframes HG into something that can not only be lived with, but also lived with a high quality of life. They carefully tested to see what level was safe to exercise at. And then I felt assured of a green light to work out and begin healing my heart

(I'm not sure what entresto is, though)

REPLY
Please sign in or register to post a reply.