Heart Rhythm Conditions – Welcome to the group

Welcome to the Heart Rhythm Conditions group on Mayo Clinic Connect.
Did you know that the average heart beats 100,000 times a day? Millions of people live with heart rhythm problems (heart arrhythmias) which occur when the electrical impulses that coordinate heartbeats don't work properly. Let's connect with each other; we can share stories and learn about coping with the challenges, and living well with abnormal heart rhythms. I invite you to follow the group. Simply click the +FOLLOW icon on the group landing page.

I'm Kanaaz (@kanaazpereira), and I'm the moderator of this group. When you post to this group, chances are you'll also be greeted by volunteer patient Mentors and fellow members. Learn more about Moderators and Mentors on Connect.

Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.

Profile picture for tlaun44 @tlaun44

I’m Tracey and I’ve never posted as part of a group before. Just desperate for support and understanding about my recently diagnosed SVT. I just came across this when researching what is triggering my newly diagnosed SVT suddenly. Started very mildly in Jan 26. Wore holter monitor for week and caught some irregularities. Took couple months to see cardiologist at end of April. During this time episodes very infrequent and didn’t last long. I barely noticed and told Doctor that. The cardiologist switched my blood pressure medication around same time I had viral infection and my PCP put me on steroids. I ended up in ER five days later on May 27. Heart racing non-stop for hours, sky high BP and anxiety like crazy. ER did all the tests and doctor said my heart was ok and that steroids triggered very bad SVT. Said should feel better once steroids out of my system. Few days later I started to feel better. Still had episodes but not all the time and not as bad until the past five days. it picked up Sun evening and got bad enough that I’m having trouble sleeping. I’m so tired. Been like this for days. I’m mostly good during day while at work but in the evening when I lie down it cranks up. I’m sure the stress/anxiety it is causing me doesn’t make it better. I also realized that some other medications i recently started might trigger so I’m going to try stopping them as well as going back on my previous BP med. It is just so frustrating and my cardiologist isn’t very responsive (only saw him the one time in end April) so I might be looking for another one. After reading some posts, I realized that I too had Covid in Dec 25 and this started about a month later. My heart just feels like it is going to jump out of my chest at times and my chest is sore as it can last for hours. Last night it was happening for several hours before I finally fell asleep but only slept about four hours then up again. Does anyone notice it happened more while lying down or at night? Hoping for some support and to not feel so alone and scared. My family tries but just doesn’t understand what this feels like and how disruptive it is. Thanks and Prayers!

Jump to this post

@tlaun44
When I took prednisone my heart just about beat out of my chest and that’s before I even had trouble with afib. I always take methylprednisolone (medrol) now and have better luck with that. Heart issues are no fun. Best of luck.

REPLY

I have questions about my paroxysmal AFib . I have an artificial aortic valve and a pacemaker. I have had afib attacks that sent me to the heart hospital over time, but recently two in six weeks. valve and pacemaker replaced two years ago. I also had a bad fall almost a month ago.
I have no appetite to speak of, wake up feeling weak. Before this fall and afib, I slept decently enough, and felt able to perform tasks etc with no problems.
What are the optimal sleep positions for afib? I now wake up several times a night and worry about getting the GEM sleep I need. I am experiencing no pain. first aortic valve replacement in 2006. No clogged arteries ever. Why can't I wake up feeling halfway good?

REPLY
Profile picture for maryellen5490 @maryellen5490

I have questions about my paroxysmal AFib . I have an artificial aortic valve and a pacemaker. I have had afib attacks that sent me to the heart hospital over time, but recently two in six weeks. valve and pacemaker replaced two years ago. I also had a bad fall almost a month ago.
I have no appetite to speak of, wake up feeling weak. Before this fall and afib, I slept decently enough, and felt able to perform tasks etc with no problems.
What are the optimal sleep positions for afib? I now wake up several times a night and worry about getting the GEM sleep I need. I am experiencing no pain. first aortic valve replacement in 2006. No clogged arteries ever. Why can't I wake up feeling halfway good?

Jump to this post

@maryellen5490 You may have obstructive, or central, or complex (combo of both types) sleep apnea. Sleep apnea, like hypertension, is a silent killer, especially if you sleep alone or your bed partner doesn't hear you snore or gasp for air every 20 seconds. Sleep apnea is a major cause of atrial fibrillation (AF).

The paroxysmal stage you are in is the best place you'll ever be in this progressive disorder. For the majority of patients, it's all downhill. However, it needn't be. Lifestyle changes help, often meds help (for a while until they don't), but the 'gold standard' of care is catheter ablation done by an electrophysiologist (EP). The problem with AF, as a progressive disorder, is that as the heart spends more time in arrhythmia it remodels itself. The vessels enlarge or thicken their walls, the mitral valve can begin to suffer, the myocardium has more and more collagen deposition and fibrosis....all of which degrade the body and the heart's function. So the conventional advice (not from me, I'm not a physician) is to consider an ablation, and do it before things begin to deteriorate more and more rapidly.

Consider requesting an overnight polysomnography. You'll soon know if you have sleep apnea, and your EP will want that, and other fixable problems, dealt with first before he/she performs an ablation.

REPLY
Please sign in or register to post a reply.