Diagnosing Oral Lichen Planus (OLP)

Posted by jbranch @jbranch, Jun 2 9:15am

I have not yet been officially diagnosed with OLP, but the Oral Surgeon I went to wants to do a tongue and cheek biopsy, based on the white "plaque" on the tongue and cheeks, and now burning of my tongue most of the time. I am wondering if others have been diagnosed without a biopsy. I am questioning the need for this procedure. Thanks for any responses.

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Profile picture for sadea0208 @sadea0208

I too was diagnosed with OLP without biopsies done in my mouth. I also have three of the four LP conditions, OLP, LP on my skin and ELP-Esophageal Lichen Planus which is extremely rare.
I also avoid hot minty things, spices, Mexican food which I loved and most citrus foods including avocado at times and drinks. My OLP can also effect my lips. From my experience having OLP and LP on my skin, it tends to flare up and down. Irritants often cause my OLP to flare up. In addition I have found that stress and emotional upset can effect my LP conditions.
Lichen Planus conditions are from an autoimmune disease. The immune system is attacking the mucus membranes in the body. I hope this info is helpful to you.
Take care ❤️

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@sadea0208
I am experiencing some rashes and my regular doctor is thinking lichen planus. Your comment about mucus membranes intrigues me. When I was getting checked for celiac, I found out that my body does not make IgA. From my research, IgA is something your immune system produces to fight off infection in your mucous membranes (mouth, nose, gastro, repro systems). I also am dubious of the idea that your body spontaneously decides to attack itself.
Questions:
1. Has anyone else been found to be IgA deficient?
2. Anyone have any research or evidence that the lack of IgA might leave mucous membranes vulnerable to attack by - who knows what?

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Profile picture for lkirnbauer @lkirnbauer

@rashida Biotene Toothpaste and mouthwash are good to use for OLP as well. Not too minty but does the job.

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@lkirnbauer
I have Oral lichen planus without biopsy. My dentist brought it to my attention about 2.5 yrs ago. In the beginning it was horrific. The dentist had me try all kinds of rinses and bolbetasol cream. I've read where some people have had it 30 or more years. Some have it and it clears up and never returns. I've been told it is indeed a autoimmune disease. I got on this blog is get ideas and suggestions from other suffers. It was suggested to use a toothpaste called Cleure. I ordered it and it is amazing. No burning like all the others I've tried. Also, when I reordered, I also bought a Cleure mouthwash. It's great as well. So stinging or burning of my gums and or inside of my cheeks. Read from another article, this person was taking Zinc. So I started taking Zinc as well. When I told my dentist I had started taking it, he said, well it is has healing effects. I truly feel, I will never be without this autoimmune disease, but I can say I'm much improved since the first diagnosis. Hope this helps

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La biopsie va encore entraîner des plaies. Je suis Française, et on ne m’a pas proposé de faire une biopsie. L’examen clinique de la bouche a été suffisant.

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Profile picture for rbush54 @rbush54

@lkirnbauer
I have Oral lichen planus without biopsy. My dentist brought it to my attention about 2.5 yrs ago. In the beginning it was horrific. The dentist had me try all kinds of rinses and bolbetasol cream. I've read where some people have had it 30 or more years. Some have it and it clears up and never returns. I've been told it is indeed a autoimmune disease. I got on this blog is get ideas and suggestions from other suffers. It was suggested to use a toothpaste called Cleure. I ordered it and it is amazing. No burning like all the others I've tried. Also, when I reordered, I also bought a Cleure mouthwash. It's great as well. So stinging or burning of my gums and or inside of my cheeks. Read from another article, this person was taking Zinc. So I started taking Zinc as well. When I told my dentist I had started taking it, he said, well it is has healing effects. I truly feel, I will never be without this autoimmune disease, but I can say I'm much improved since the first diagnosis. Hope this helps

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@rbush54 yes, it is an autoimmune condition so I curable, but controllable. I find kids Sensodyne toothpaste works for me. No burning or stinging. When Inhave a flare I use Lyderm gel.

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Most experienced dentists and oral surgeons deal with lichen planus in the mouth on a regular basis. If a patient has an atypical appearance or symptoms it can be more difficult to offer a certain diagnosis.
Dermatology specialists also treat and follow oral LP routinely along with their cutaneous LP. An observed typical lichen planus is a clinical diagnosis
not usually biopsied,just treated an observed.
A second opinion from a dermatologist may help in your situation.
They can work with your dental specialist if a biopsy is required.
Oral lichen planus can relapse and recur. If it is a long term problem it needs to be followed with regular exams as there is a small chance it can evolve into
cancer over the years. Be alert to changes in your skin, scalp and nails and it can show up in any mucous membranes

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