Treatments for stargardt disease?

Posted by tiburon @tiburon, Jun 17 5:38am

Any treatment updates on stargardt disease please

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John, Volunteer Mentor | @johnbishop | Jun 17 7:35am

Hello @tiburon, You will notice that we changed the title of your discussion a little to better describe your question so members with experience or information can respond. I did find a 2024 update from Mayo Clinic in case you haven't seen or heard about it.
-- First FDA-approved retinal gene therapy available at Mayo Clinic
https://www.mayoclinic.org/medical-professionals/ophthalmology/news/first-fda-approved-retinal-gene-therapy-available-at-mayo-clinic/mac-20575863
The Fighting Blindness Organization has some information on the latest research and clinical trials if you haven't seen it - https://www.fightingblindness.org/diseases/stargardt-disease.

Are you being treated for Stargardt disease?

pamela76 | @pamela76 | 6 hours ago

My brother was diagnosed with stargarts many years ago. He has gone to the University of Iowa but was told if any treatment ever comes up they will contact him. He has a Tesla car. Sees somewhat with peripheral vision. He’s very smart so has been able to adapt. His other senses have become more acute.