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Stress and Parkinson's symptoms

Posted by esther589 @esther589, May 25 1:51am

I think my symptoms are increased when I feel stressed.
We currently have visitors staying close by and the pressure I feel to think about their needs every day as well as our own seems to be making my symptoms worse.
I've noticed it also when I go for hospital visits.
Do others experience this?

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esther589 | @esther589 | 1 day ago

I'm sorry to hear that you're having a bad day.
There will be better days.. I hope tomorrow will be one of them x

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haaskencal | @haaskencal | 21 hours ago
In reply to @coho222 "The gastroparesis I have, which is probably related to my Parkinson’s and getting Dilaudid injections from..." + (show)
Profile picture for coho222 @coho222

The gastroparesis I have, which is probably related to my Parkinson’s and getting Dilaudid injections from my primary care before he realized that I had Parkinson’s And that my butt pain was dystonia and Does not respond to narcotics. In any case, because of the gastroparesis, my medication‘s are not really working very well because they’re not being metabolized in the right part of my digestive system. So despite taking large doses of carbidopa levodopa in the form of Rytary ;What were those of you who don’t know is a long acting carbidopa levodopa. I currently take five doses of Rytary Starting at six in the morning every morning and ending up at 7:30 in the evening. A majority of the constipation I have is related to the carbidopa Levodopa. However, things are going to change for me real soon as I have been approved for VYALEV, Which is an injectable form subcutaneous. It requires that I wear a pump 24 /7. I’ve been told it takes a while to get your dose correct but it should eliminate much of the constipation. This is a pretty big deal for me. Hopefully, it’ll help.

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@coho222
I have had Parkinson for 10 years & have had stomach issues & constipation most of the time. I switch to Vyalev June , 2025. The stomach issues & constipation are much better BUT Vyalev has other issues. The pump is about 2 pounds and is attached 24/7 but the vile of medication is 120 mg which lasts me 19 - 20 hours . As a result, I change the syringe at different times every day. There are many things I cannot or chose not to do because of the pump (e.g. swimming, working with equipment, yard work.

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sdcz | @sdcz | 20 hours ago
In reply to @goatgirl28 "having a tough time coping today. any encouraging words?" + (show)
Profile picture for goatgirl28 @goatgirl28

having a tough time coping today. any encouraging words?

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@goatgirl28 Hang in, some days are more difficult than others! We have all been there -- giving you a big virtual hug!!!

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meg17 | @meg17 | 15 hours ago
In reply to @nova11723 "@coho222 Keep fighting! Sometimes this disease seems like it is dominating you, but then you can..." + (show)
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@coho222
Keep fighting! Sometimes this disease seems like it is dominating you, but then you can unexpectedly snap back. Finding the right cocktail of medicine is not always a straight-forward thing. Each hospital needs a Dr. House.

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@nova11723
We just hope for a little break in the tedium of pd and horrid symptoms..

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