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Ttird various remedies for OAB at night, actually 24/7, nothing worked
Well here comes my tale of woe and woe is me!
For over 3 months now I’m awakened ever 2-2 2/2 hours every night to use the bathroom to urinate. Over and over again! Now even in a diaper, and how horrible is that?
So, here’s what as been performed by various urologists:
1-Performed TURP, minor operation to reduce size of prostate: Nope, did nothing!
2-Switched off Oxybutinin since I was told that it’s not safe for long term use:again a bid Zero did nothing.
3- Do now this urological surgeon suggests I need what is called SCN, Sacral Nerve Stimulation.
A battery pack is placed around your waist to control impulses caused by your Sacral Nerve to control your bladder.
Wow, I must tell you I’m all honesty, THIS PROCEDURE WAS THE MOST PAINFUL I HAVE EVER EXPERIENCED!!
6 needles to the base of my spine, each one hurt more than the last.
I asked the surgeon if he knew what Lidocaine was? His answer was what do you think I’m injecting you with???
Failure rate on that procedure is about 50%, do thst was a true waste! Luckily first it’s only temporary prior to cutting into you skin to bury the wires, yuck.
If you’ve even been unlocks enough to feel kidney stones, thieves like having 3 all at the same time, and boy did I scream!!!!
4-So now a new brilliant idea, inject Botox into your bladder to slow it down, BUT it does not last and you must revisit periodically for another injection!!
Well you get my point! Now I don’t know how to proceed or what further solutions even exist.
I’ll keep investigating and if there is any POSITIVE NEWS I’ll add an addendum to this post.
HORRIBLE BEING TOTALLY EXHAUSTED EVERY MORING AND FALLING ASLEEP AT A RESTAURANT TABLE!!
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There is discussion on nocturia in the sleep health group as well.
Have you tried any of the other meds for OAB? Nocturnal polyuria is
possibly related to sleep apnea so a study is a good idea.
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1 ReactionThanks for the response, sorry about typo!
2 Drs said to me that they have tried EVERY MEDICATION THST RXISTS TO HRLP ME SLEEP! I said okay but I get up to go to the bathroom so how are sleep meds going to help me?
Oh yes, you have OAB, well that has to be treated first!
Yes, I know I say I’m trying, but this far NO LUCK!!
HI for me what ended up working to help me sleep was a CPAP machine.
I was not getting air to my Brian LOST a LOT of my memory. during sleep stop breathing 78 times per hour it would wake me up 5-7 times a night it took months to get better sleep now I am waking up 2-3 times I feel a lot better.
Hope this helps
@dennismm
I’ve had this problem most of my life(71f), so I can sympathize. I did turn out to have sleep apnea, so do get tested for that. However, the CPAP has not stopped the bathroom trips in my case.
You’ve had this about 3 months? Can you think back to any stressful event that happened? Any new illnesses or medical conditions?
Instead of a diaper, I sleep with a large water proof bedpad in case of any accidents.
I use Xanax to relax me, and it does put me to sleep. Yes, I still wake up but I go right back to sleep.
A lot of things can cause this: heart or kidney issues, diabetes, lack of anti-diuretic hormone at night, emotional stress, apnea, constipation,uti’s, etc. Have they checked for everything?
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3 Reactions@seniormed I was told I definitely don’t have OSA so Drs sat they can’t help solve OAB first!’
@bigj thanks but I do not have OSA!
I found raising the head of my bed helped. My neurologist made me aware
of potential side effects of Botox like needing to self cath until it wears off so
I chose against it. Is your BP normal?
@seniormed Thanks for the courtesy of the response!
FYI, my BP is usually pretty stable, except some mornings it’s like 140/95 which I don’t like. Dr not sure why, however I’m on meds for it.
I was told bladder/Botox injections are my next step and I said no for a myriad of reasons. Dr said that’s last choice and I still said no. It my body and my choice.
Si now I’m getting MAYBE 3-4 hours of sleep every night, not enough.
Take care and thank you!
I have no advice, except have you had your blood sugar checked? Good to rule that out.
I'm sad to read about your horrible experience with the needles, @dennismm
If you can spare $25 I highly recommend you try an "analog" (not "digital") TENS box. As I reported here:
(https://connect.mayoclinic.org/comment/1610056/) we've had remarkable success in greatly reducing and sometimes eliminating the sleep interruptions you mention. The analog type gives you fine control over the level of tingling, and even at the maximum setting it's not nearly the experience you describe. Because it uses removable pads, you can also experiment with placement, including on the tibial rather than sacral nerves.
I sure hope you can find a solution that works for you.