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Anyone have long term recovery?

Posted by Laura Dropps @ldropps, Feb 25, 2023

I was positive for Covid for the first time in November 2020. It's been a rollercoaster ride and I believe I'm as well as I've been since then. I am not where I want to be, however and not where I thought I'd be after going to the Mayo. I wish I could even talk to a nurse or my doctor, but I was told I'd have to start at the beginning at the Mayo. So I have an appointment in May with a rheumatologist here at home. Hopefully, something will come of that. Has anyone had close to a full recovery?

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

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joansmurphy | @joansmurphy | Mar 8, 2023

Thank you. I play a lot of word games etc. too. I like one called 7 Little Words which is challenging right now but you really have to rely on your memory. Good luck to you as well. It helps to talk about it with other experiencing the same.

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nitaharris | @nitaharris | 3 days ago
In reply to @kentkemmerling1949 "I had COVID 2 months before the vaccine was available and have not been able to..." + (show)
Profile picture for kentkemmerling1949 @kentkemmerling1949

I had COVID 2 months before the vaccine was available and have not been able to walk well since. My balance is terrible and I feel dizzy often. Does anyone else experience this? Also, I was the president of a couple organizations and now am just not able to organize my thoughts well enough to maintain my position. Maybe it is brain fog? Not really sure what brain fog is... can anyone describe what they experience when they say they have brain fog?

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@kentkemmerling1949 I am 79. People say I look very young.I always had a great outlook .I was in hospital for 3 weeks with covid
the very day I left the hospital I couldn't, walk, it has been7 years. I cry, I will never walk again

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kentkemmerling1949 | @kentkemmerling1949 | 3 days ago
In reply to @nitaharris "@kentkemmerling1949 I am 79. People say I look very young.I always had a great outlook .I..." + (show)
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@kentkemmerling1949 I am 79. People say I look very young.I always had a great outlook .I was in hospital for 3 weeks with covid
the very day I left the hospital I couldn't, walk, it has been7 years. I cry, I will never walk again

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@nitaharris sometimes I think the same thing. I can walk but just barely and only with the help of a walker. It went from being active Outdoor person to now I have to not stay within reach of my walker. So I’d say it’s hard to say what’s gonna happen in the feature, but Covid was a son of a gun. It’s hard to stay positive isn’t it?

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h2998sc | @h2998sc | 2 days ago

Try some choline,NAC and NAD and B5.This may help your cognitive issues.

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julieilic | @julieilic | 2 days ago

Anyone heard of these helping:
Apparently nicotine patches can help. But side effects like heart rate increase etc are not good..
Also spike detox supplements.
Since covid I have a heavy neck, under chin condition and it is debilitating.

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1 reply
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jrg200911 | @jrg200911 | 2 days ago
In reply to @law59 "@rinadbq. I am literally tearing up as your post so closely resembles my new life. I..." + (show)
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@rinadbq. I am literally tearing up as your post so closely resembles my new life. I had my vaccines and booster and post covid over year now. Your realistic yet empathetic view is what I wish every long haul patient could hear from their healthcare system. Thank you!!🌈

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@law59
@rinadbq
I ditto your comments.
In 2026, I am in year 6 of LC. On Federal Disability (SSDI), mainly because of severe LC brain fog, and dizziness/imbalance. Though greatly improved, am still struggling with all of my "bag-o-symptoms". Each day is random on which will be prominent. I use the same helps you both mention. Life remains greatly altered. The best things in life for me are my faithful, loving, present Lord and Savior, Jesus Christ, Who carries my heart; an understanding, supportive husband, gracious friends and family.

I hope life continues to bring blessings to you, despite these debilitating health trials.

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truwomandi | @truwomandi | 2 days ago

From what I have read and heard, there doesn't seem to be any permanent recovery. We just have to learn to live with our dehabitations. (arg)

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truwomandi | @truwomandi | 2 days ago
In reply to @truwomandi "From what I have read and heard, there doesn't seem to be any permanent recovery. We..." + (show)
Profile picture for truwomandi @truwomandi

From what I have read and heard, there doesn't seem to be any permanent recovery. We just have to learn to live with our dehabitations. (arg)

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@truwomandi debilitations

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law59 | @law59 | 2 days ago
In reply to @jrg200911 "@law59 @rinadbq I ditto your comments. In 2026, I am in year 6 of LC. On..." + (show)
Profile picture for jrg200911 @jrg200911

@law59
@rinadbq
I ditto your comments.
In 2026, I am in year 6 of LC. On Federal Disability (SSDI), mainly because of severe LC brain fog, and dizziness/imbalance. Though greatly improved, am still struggling with all of my "bag-o-symptoms". Each day is random on which will be prominent. I use the same helps you both mention. Life remains greatly altered. The best things in life for me are my faithful, loving, present Lord and Savior, Jesus Christ, Who carries my heart; an understanding, supportive husband, gracious friends and family.

I hope life continues to bring blessings to you, despite these debilitating health trials.

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Hi @jrg200911. Just happened to check Mayo and what a nice hug and so glad I could help in any way! I send you a hug and many inspiring love filled days ahead🌈

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klf58 | @klf58 | 1 day ago
In reply to @julieilic "Anyone heard of these helping: Apparently nicotine patches can help. But side effects like heart rate..." + (show)
Profile picture for julieilic @julieilic

Anyone heard of these helping:
Apparently nicotine patches can help. But side effects like heart rate increase etc are not good..
Also spike detox supplements.
Since covid I have a heavy neck, under chin condition and it is debilitating.

Jump to this post

@julieilic I could not tolerate adhesive on the patches, but nicotine gum has helped me. However, I am not currently taking it, since I'm adjusting to elevation change due to a cross country move.

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