Nidra TOMAC device
Does anyone have experience with the Nidra Tomac device for RLS? I am currently on Pramipexole 0.25 Mg Tablet and although it works for me I would like to not have to take medication if possible.
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@lk8
Hey there! I would not accept anything until you are sure you are approved. Call your doctor back. His nurse will get you preapproval of either let you know you are not approved. Hopefully, you will get approved and have great success! I am so pleased. Only been on since April 2026. Good luck!
kdunn44
@lk8 Why don't you call the Noctrix Company (it's in California--it's address and phone number can be googled)? They make the Nidra, so "sales" are in the best interest in the company. From my limited knowledge, it seems a number of insurance claims have been denied. Noctrix will have the best handle on how to deal with insurance and they (for me) have been incredibly nice and helpful when I communicated with them. (You probably read that I'm one of Nidra's success stories from my postings--I hope you get the device and I hope it is equally effective for you).
@missjb thanks for your reply. I have called the Noctrix company several times and Summer keeps saying that Noctrix has been approved by medicare and that they do NOT do pre-approvals. She also said that 'their' nurse approved my prescription. I told her to go ahead and send it to me and if medicare doesn't approve it, I will send it back and I will not pay for anything. She said that would be fine, but I have nothing in writing. My concern is that I've heard so many are denied.
@lk8 Pre-approval was not part of the process when I got Nidra.
My perception is "approval" has been an issue for some people. Initially, I got this impression from the Noctrix nurse I spoke with. She said it was important that the prescribing doctor include patient history--which someone at the Noctrix Co was going to evaluate. Maybe, this was because Noctrix wanted to build a good reputation with Medicare--only have qualified patients apply for insurance funding.
My doctor evidently did this acceptably because it was only a matter of 3 weeks between submission of the prescription and picking mine up.
Or, maybe Medicare looks at past billing related to RLS to see if there is history. I don't know how insurance works--deciding to approve or deny. But, I did have years of Medicare billing specifically for RLS care.
In general, I have read that all insurances deny some claims and that appealing is successful more times than not.
Most of my contact with Noctrix has been email--you could call one more time and ask Summer (or someone) to email what was said over the phone (give her your email or ask for hers) and then you would have this verbal agreement in writing. (Emails count in a legal sense as much as a paper letter).
I can understand the possible expense making you nervous--particularly not knowing if Nidra will work for you (until you try it).
Really, I think the company is trying to build a good reputation, and they will stand by what Summer told you.
My sense of Noctrix from the support I have been given is that they are honorable. I wouldn't post about them in glowing terms if my experience hadn't been so good. Also, I googled the Noctrix board a year ago and I was impressed with their resumes. I don't remember exact details but schools like MIT and Stanford come to mind.
My own experience was getting an email address somehow (after I read about Nidra in research articles) and then having a phone call with a nurse, who explained Nidra was only available in certain states, but not where I live--yet. I said I could travel to a state where it was available (Ohio), but she said it still wasn't possible. A year later, Noctrix contacted me and gave me permission to start the prescription process and then pick mine up in Ohio. I was very impressed that someone in the company followed up (without any prompting from me)--an entire year later.
My doctor did mention that some of his patients have been denied Nidra approval by insurance. But I have no idea how this looks in actual numbers. Is it "many" or does my doctor just think all his prescriptions should be approved (he is a RLS expert--so, really, they should).
I'm going to start a thread for people with Nidra so we can compare our Nidra experiences and maybe be helpful to people just starting out (like you will be). For me, there was a process of getting used to it. Then, the neuromodulation (change in my brain, reducing the frequency and severity) was months and months in coming.
Some people do not have the success I have had. I hope, lk8, that you will. Please do keep us posted!
@lk8 After my last post, I put my husband to work--looking for the answer to why Nidra is denied by Medicare. He found (on some FDA or Medicare website) that approvals are based on medication being trying and not working adequately. My medication helped prior to Nidra, but my symptoms continued and were still significant. It sounds like that kind of a scenario needs to be expressed when Nidra is prescribed. I hope this is helpful information.
@missjb
@missjb thank you! Summer said that my state will be approved in August and she'll contact me at that time. I'll keep everyone posted. Thanks again!
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1 ReactionYour description " It feels more like the "jerk" is stuck and can't get out--so the sensation is an aching pain--that rapidly builds in intensity. I have always described my RLS as painful, even when I didn't know it was RLS." is EXACTLY how I describe it... an aching pain. I'm on 2mg ropinirole and pregabalin 3 times a day, but it's not working. Often my leg pain starts in the afternoon and just gets worse into the evening. Finally, it subsides and I fall asleep only to wake up to tingling a couple hours later. The Nidra rep says that Florida will get it through ResMed sometime in August. I can't wait. In the meantime, I've been taking gummies in the middle of the night, but then I feel like crap the next day.