Vagus Nerve Stimulation for PD Autonomic Symptoms

Posted by spatase @spatase, Jun 21 3:50pm

My husband suffers from heat/cold dysfunction. It changes rapidly from one condition to another and can be triggered by eating, working on his computer, playing cards or standing in the sun. Once it starts, it causes anxiety, nausea and an increase in tremors. Has anyone tried one of the various machines to stimulate the vagus nerve and to calm some of your autonomic symptoms?

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I don’t have those symptoms. I have a Truvaga device,originally suggested to me to prevent headaches. I find it helps me to get over sleep hangover, when i wake up after lying down to nap during the day, because of fatigue. Sometimes the truvaga helps me a a lot to wake up, sometimes less.

Vagus nerve stimulation is supposed to be helpful for many things. Truvaga is not real cheap about $500. There are several other vagus stimulation devices over the counter now.

Good luck,hope I helped a little!

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Hi, @spatase - Fellow members like @jesslily @southwest may have some thoughts or experiences with vagus nerve stimulation devices to share with you.

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Hi, I tried out a neuropod and after trialing it for the maximum time, decided to return it. I didn't notice any improvements, and on top of that, the ear piece suddenly quit. It was very expensive and I handled it with care, so having it malfunction so quickly was not a good sign. Every person is different though. I have complex autoimmune issues on top of PD, so my treatment is complicated too. As a final note, the company was great to work with. They were helpful, responsive, and the return process was easy.

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Profile picture for jesslily @jesslily

Hi, I tried out a neuropod and after trialing it for the maximum time, decided to return it. I didn't notice any improvements, and on top of that, the ear piece suddenly quit. It was very expensive and I handled it with care, so having it malfunction so quickly was not a good sign. Every person is different though. I have complex autoimmune issues on top of PD, so my treatment is complicated too. As a final note, the company was great to work with. They were helpful, responsive, and the return process was easy.

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@jesslily Thank you for your response. My husband also has complex autonomic issues and we are hopeful the Nuropod will help. We ordered one today primarily because they assured us we could return it in 30 days. I'm glad to know they were true to their word.

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Profile picture for spatase @spatase

@jesslily Thank you for your response. My husband also has complex autonomic issues and we are hopeful the Nuropod will help. We ordered one today primarily because they assured us we could return it in 30 days. I'm glad to know they were true to their word.

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@spatase I hope it helps him! Another tip; I was indecisive after 30 days, and reached out to them. They then extended the trial time (I can't remember... it was for at least two more weeks, maybe another 30 days.) The tricky part is it's supposed to take a while to work, so it can be hard to determine in that time. I found an FB group with people comparing notes that was also very helpful. For instance, start out with short sessions at low settings. And it really is key to clean your ear before use! Best of luck!

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