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Have nonepileptic seizures/psychogenic nonepileptic seizures (PNES)?

Posted by DrivenByME @drivenbyme, Nov 9, 2017

In January 2014, after a battery of tests, I was diagnosed with psychogenic non epileptic seizures (PNES.) Information was not as plentiful as the resources are now, yet what I did find offered no real hope of recovery. November 2017 I am 2 years seizure-free. I am hope to all who decide they ARE going to recover from PNES. I've made YouTube help guides for those searching (youtube.com/christinemauriello) I hope you find guidance you need, when you need it.
Please feel free to use this forum for anything related to PNES.
God bless

Interested in more discussions like this? Go to the Epilepsy & Seizures Support Group.

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emaputric | @emaputric | 2 days ago
In reply to @whs2026 "@whs2026 Meant to mention the symptoms of my "Spells": 1. Shortness-of-Breath, followed by 2. Total body..." + (show)
Profile picture for whs2026 @whs2026

@whs2026 Meant to mention the symptoms of my "Spells":
1. Shortness-of-Breath, followed by
2. Total body weakness, followed by
3. Tightness in throat & face - difficult to speak, followed by
4. Chills
5. Pain in back between shoulder blades
6. Headaches

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@whs2026 Hi! I am reading this and Im fascinated because I was diagnosed with epilepsy 3 years ago, but started presenting unusual symptoms one year ago( exactly the ones that you have described) but i have been told multiple times it is just panic attacks… reading this is making me question a lot of statements coming from my doctors. How did you end up treating it and how long did it take for it to be fully gone, if you dont mind sharing details🥹

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katcollins | @katcollins | 2 days ago
In reply to @ellierwin "I just had a VEEG done this week. I’m home now. Got discharged yesterday and I..." + (show)
Profile picture for ellierwin @ellierwin

I just had a VEEG done this week. I’m home now. Got discharged yesterday and I learned that I have functional seziures and may have epilepsy also.

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@ellierwin I’m curious who diagnosed this for you. I have been diagnosed with these as well. In my first hospital stay, upon having a VEEG, I was told they were pseudo seizures. It took many doctors and specialty clinics to get the functional movement disorder diagnosis.

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