Have nonepileptic seizures/psychogenic nonepileptic seizures (PNES)?

@whs2026
How long do these episodes last?
Jake

@jakedduck1 My episodes last 20 minutes to three-four hours; the spells are constant, happening all day & evening long and come out of nowhere...can be sitting, and I get a spell. Also, after taking a shower, drying dishes or taking clothes out of the dryer, I get a spell. Sometimes before I sit down for a meal, I get a spell.Also, I get a spell during the sleeping hours. Basically, the spells are non-stop with short breaks in between.

@whs2026 Meant to mention the symptoms of my "Spells":
1. Shortness-of-Breath, followed by
2. Total body weakness, followed by
3. Tightness in throat & face - difficult to speak, followed by
4. Chills
5. Pain in back between shoulder blades
6. Headaches

@jakedduck1 Additional information regarding my episodes/spells....
Meant to mention the symptoms of my "Spells":
1. Shortness-of-Breath, followed by
2. Total body weakness, followed by
3. Tightness in throat & face - difficult to speak, followed by
4. Chills
5. Pain in back between shoulder blades
6. Headaches

@hosey70 sounds like Cluster Seizures. My son has had them for years diagnosed at age 2 with epilepsy, Lennox-Gastaut Syndrome. Which has a distinct effect on EEG. Started with Multiple myoclonic jerks at an early age. He would have up to a hundred at a time, like rapid fire. Now that he is older, 37 he has similar episodes to what you described your husband having. Our son is mostly non-verbal so hard to know what he feels like. In the last 6 months he’s had 2 episodes of cluster seizures that have persisted for 6-8hrs. Both times related to UTI. The difference in our son’s case is each seizure usually lasts less than 60 seconds but repeats every 1-2 minutes. And again he has a distinct abnormal EEG with slow spike waves. A little over 2 years ago our youngest daughter was diagnosed with epilepsy after 3 episodes of “passing out” with short lose of consciousness, yet normal EEG. What prompted the diagnosis was when her husband FaceTimed me while she was seizing (generalized tonic type) that lasted at least 2-3 minutes followed by stupor/confusion. She slept on and off most of that day. She’s had one episode that I know of since diagnosis and being placed on anti seizure meds. Have you video taped any of these episodes? Might be helpful to show doctors.
Hoping you can get some answers soon.

I just had a VEEG done this week. I’m home now. Got discharged yesterday and I learned that I have functional seziures and may have epilepsy also.

Your poor husband!!!! ...... I feel for him!
After experiencing an incident where I couldn't speak for a minute or two, they diagnosed me with a seizure or stroke. They put me on 2000 mg of Keppra and two months later decided I didn't have a seizure or a stroke but they did release a lot of blood which was pushing my brain to the right. It was caused by excessive Plavix Prescribed by the Doctor who put in my watchmen heart screen.
Trying to get off Keppra now Is extremely difficult. I have A very gentle taper but it still feels like I'm coming off something like heroin. i'm down to 250mg for a nine day period and each session feels like a Cannonball has been added taxing my weight and strength. Strangely my wife says I look like I have more energy .....Does anybody have any experience with similar and can anybody assure me that it will go away and how long? Thanks, Pete

@peterkanyuk
It's sounds like your taper is too quick and causing withdraw symptoms.. I’d slow it down considerably.
Take care,
Jake

@hosey70 What helped me the most was an MRI of the brain. They discovered a growth in the center of my brain they thought was the focus of my epilepsy. After removing it, my epilepsy seemed to disappear. No more seizure activity since. I was having grand mal seizures often before the surgery. Consider getting an MRI of the brain done.

@jakedduck1 I did have responses to my grand mal seizures by people who earlier witnessed them. I would often drop to the floor and shake, rattle & get stiff afterwards. I'd often bite my tongue or lip or cheek as well. My girlfriend saw me fall out of bed one time, as I started to shake uncontrollably. She turned me over to my side so I wouldn't swallow my tongue. She knew what she was doing to help me. I later had one grand mal at work, even though I was on the most medication I could take at the time. I just dropped to the floor and rattled & rolled & shook like crazy. My foreman was livid. He insisted i see my Dr. real soon. He was afraid I'd hurt myself on the machinery. My dr. planned an MRI soon after. he discovered a tumor in my right temporal lobe & a growth in the center of my brain. Both were removed a month later. I happen to be on a precautionary drug (Valproic Acid.) I'm as happy as a lark w\my life now! No more symptoms since.