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MGUS and pain
I was diagnosed with MGUS the Fall of 2023. Recently I am experiencing severe pain in my right knee, left ankle and now my neck/shoulders. Has this happened to anyone else? And does the pain relate to the MGUS?.
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@sanyukta it’s always frightening to hear news of a loved one’s illness. There are so many variables that it’s difficult for anyone to say with certainty just what the path of this illness will be. The good news is that there has been a lot of progress in the treatment of multiple myeloma.
“Watch and wait” is hard for a lot of us who are used to finding a treatment and working to cure what ails us. It’s important to remember that diet, exercise and working at what we can control to meet overall health goals is within our reach.
It’s also important to have a good relationship with her hematologist/oncologist. I’m sure you have many questions and it’s important to make a list of those concerns and speak about them during your mother‘s appointments. Having a good online community is also helpful and I hope that you can establish some of those relationships here on Connect. Keep in mind that everyone’s health profile is different, even if we suffer from the same disease. We can still learn a lot from one another.
Have you had a chance to talk to your mother’s physician since your initial post?
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2 ReactionsI have both PMR and SMM. I was told that MGUS and SMM can cause pain in some people, but as some people have stated, it's hard to distinguish one pain from another. A PET scan can check for bone lesions but unless meds are affecting the diagnosis, it may not be warranted for MGUS. I'm also assuming that the MGUS diagnosis was confirmed with a bone marrow biopsy.
@kayabbott pet ct shows only lungs plasmacytoma and bone marrow biopsy shows 5% plasma cells dr said us to opt for radiation therapy for lungs plasmacytoma we are going for it and they they will do follow up for plasma cells observation
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1 ReactionDiagnosed in 9-2023 with MGUS. Was having pain in right hip area. On 12-4-23 my right femur collapse 6" below hip joint eaten away by multi-myeloma. See an oncologist immediately.
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1 Reaction@sanyukta My baseline BMB 10 years ago showed 5% deranged plasma cells, MGUS level. SMM for 1 year so far. Hopefully your plasma cells stay at 5%, and the radiation is successful for the plasmacytoma.