MGUS and pain

I would like to tell everyone how happy I am to have found these pages and all of you. I have several term and some new medical issues . In reference to MGUS my immunologist mentioned in an e mail that I had it. Period. I was actually referred to an oncologist by my pain management PA, when I asked her about it. Also I had one more email with the immunologist who questioned me going to cancer Dr. .. because he said MGUS was benign There's more too this story but hello!

I've had MGUS present in my Electrophoresis tests for years and it will always show up. I'm IgG kappa and have LOTS of bone pain everywhere; particularly in my back and ribs. My mother died from MM in 1985, so, of course, I was really concerned for a while. But since my bone marrow biopsies (have had 2 now) didn't show high number of plasma cells present, they only monitor my MGUS once a year. Been told I probably will never have MM. MGUS is just another annoying hammer over our heads these days but after the MM doc at the NIH suggested bisphosphonate infusions, the pain is much better. I had something like 6 infusions of Reclast years ago but can no longer have them as they can worsen or cause jaw and hip problems. Have lots of osteoarthritis issues but only take Advil now to help.

Best wishes!