MGUS and pain

Posted by dducote @dducote, Feb 15, 2025

I was diagnosed with MGUS the Fall of 2023. Recently I am experiencing severe pain in my right knee, left ankle and now my neck/shoulders. Has this happened to anyone else? And does the pain relate to the MGUS?.

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Patty, Volunteer Mentor | @pmm | 1 day ago

In reply to @sanyukta "My mother after 10 yrs of kidney transplant now diagnosed with multiple myeloma at very initial..." + (show)

@sanyukta it’s always frightening to hear news of a loved one’s illness. There are so many variables that it’s difficult for anyone to say with certainty just what the path of this illness will be. The good news is that there has been a lot of progress in the treatment of multiple myeloma.
“Watch and wait” is hard for a lot of us who are used to finding a treatment and working to cure what ails us. It’s important to remember that diet, exercise and working at what we can control to meet overall health goals is within our reach.
It’s also important to have a good relationship with her hematologist/oncologist. I’m sure you have many questions and it’s important to make a list of those concerns and speak about them during your mother‘s appointments. Having a good online community is also helpful and I hope that you can establish some of those relationships here on Connect. Keep in mind that everyone’s health profile is different, even if we suffer from the same disease. We can still learn a lot from one another.
Have you had a chance to talk to your mother’s physician since your initial post?

kjoed53 | @kjoed53 | 1 day ago

I have both PMR and SMM. I was told that MGUS and SMM can cause pain in some people, but as some people have stated, it's hard to distinguish one pain from another. A PET scan can check for bone lesions but unless meds are affecting the diagnosis, it may not be warranted for MGUS. I'm also assuming that the MGUS diagnosis was confirmed with a bone marrow biopsy.

sanyukta | @sanyukta | 18 hours ago

In reply to @kayabbott "@sanyukta If your mother was diagnosed with smouldering MM, the prognosis is generally wait and see..." + (show)

@kayabbott pet ct shows only lungs plasmacytoma and bone marrow biopsy shows 5% plasma cells dr said us to opt for radiation therapy for lungs plasmacytoma we are going for it and they they will do follow up for plasma cells observation

jrenjr | @jrenjr | 17 hours ago

Diagnosed in 9-2023 with MGUS. Was having pain in right hip area. On 12-4-23 my right femur collapse 6" below hip joint eaten away by multi-myeloma. See an oncologist immediately.

kayabbott | @kayabbott | 14 hours ago

In reply to @sanyukta "@kayabbott pet ct shows only lungs plasmacytoma and bone marrow biopsy shows 5% plasma cells dr..." + (show)

@sanyukta My baseline BMB 10 years ago showed 5% deranged plasma cells, MGUS level. SMM for 1 year so far. Hopefully your plasma cells stay at 5%, and the radiation is successful for the plasmacytoma.

tdlee64 | @tdlee64 | 3 hours ago

In reply to @pcasey "Hi Patty. I was also diagnosed with Mgus and everything I have read shows curcumin to..." + (show)

@pcasey Hi I was diagnosed with MGUS March of this year my M spike has increased from 0.13 to 0.5 in June could you please help me understand about curcumin I have seen someone talk about this before and can you recommend what exactly to use. I would greatly appreciate it this is all new to me I have never been sick I have always exercised and tried to be conscious about my health and then this hits some days I find it hard to just breath and I'm trying my best to stay calm and learn. Do I need to also change my diet I have a sweet tooth🤦‍♀️Thank you I await your response

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