How can I deal with undiagnosed, unrecognized, likely dementia?
Living as roommates with a very good friend who demonstrates behaviors not normal in aging. These have been confirmed by my own counselors when described to them by me. My friend recognizes nothing of these changes. So far none are severe enough to warrant a confrontation. Diplomatic remarks about my concern for him (without being specific), and mentioning specific memory lapses have been ignored. Neither of us have any family support. He is estranged from both his sons. While I do see counselors for help managing my lifelong Clinical Depression ( aka Major Depressive Disorder), which is successful, and they have suggested bringing in a social Worker who could help my friend, there’s no way I can suggest it to him as he sees nothing wrong.
I feel like I’m on tenterhooks, waiting for further symptoms to develop, while dreading the same.
After retiring from being a Home Support Aide because I no longer wanted to do this job, I do NOT want to be a caregiver for my friends. Yet how can I abandon him? I’m finding it very difficult to go along “one day at a time”, not knowing where I’m going. And it becomes more stressful as I become responsible for more daily aspects of life that he forgets or can’t reason through.
I’m an information/knowledge person. It feels like, in spite of all the information and knowledge I have, I’m in limbo. I hate limbo.
Any suggestions from anyone who’s recognized early onset dementia or MCI without a diagnosis would be appreciated.
PS. This is my first time on this forum.
Interested in more discussions like this? Go to the Caregivers: Dementia Support Group.
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@shmerdloff knowing all the science helps, in a way. Yet, one does grow weary of removing the milk from the dishwasher.
We’re not at that stage in this household. Thus, limbo.
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2 Reactions@sunnygardens
Love it. This is ALL limbo.
If you don't become the ocean, you will ALWAYS be seasick. LC
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4 Reactions@shmerdloff I’ll have to ponder that. So far, I can’t figure out how to become the ocean…….
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3 Reactions@sunnygardens
No you. Just Ocean.
Unclench Let Go.
When I do my laps, after a bit, I am water. No up no down no left no right. I re-form when I come out of the pool.
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4 Reactions@shmerdloff thanks. I believe this will be easier when I actually get to the ocean later this summer. Good ol’ Leonard. ❤️
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3 Reactions@doclarrea It sounds like you went to the wrong neurologist. Find one who specializes in memory care. Also I question the PCP who could have done tge Mini Mental. Look it up online. You can do a game with him and see who can finish first- him!
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3 ReactionsCould my friend’s memory problems really be caused by his thyroid? I’m getting scared, and telling myself maybe it ISN’T a dementia symptom.
But yesterday he claimed to have no recollection of his NP suggesting blood tests and a cognitive baseline test. That conversation took place ten days ago.
He has no one else. If it is dementia, I don’t want to be a caregiver again but I don’t want to abandon him.
It’s all too scary.
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7 Reactionssunnygardens, it is really scary, but it could be thyroid remedied by hormone replacement or something else even more easily remedied. You'll help him find out and later you may have to abandon him, but you probably won't. I've been to lots of md consultations as a relative or friend. Almost always there is something the patient doesn't remember or remembers incorrectly. But there must be other suspicious memory lapses for the NP to suggest a baseline test. I hope he turns out to be healthy. Bless your struggle.
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9 Reactions@gently thank you so much.
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1 Reaction@shmerdloff thought of your comments when I read this.
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