Connect
Anyone else out there with extremely high lipoprotein (a)?
Hi! I just found out that I have an extremely high lipoprotein (a) of 515 nmol/L. I'm terrified; it's that high. I'm 58 years old and my total cholesterol is 212. My LDL is 141, and my HDL is just 40. My cholesterol/HDL ratio is 5.3. Of course it's a long weekend and I may not be able to reach my doctor tomorrow. I have watched a couple of informational sessions online from various doctors discussing elevated LP(a), but no one mentions anything close to how high mine is. Is there anyone else out there with severely elevated Lp(a)? Thanking you in advance. Sue M.
Like
Helpful
HugInterested in more discussions like this? Go to the Heart & Blood Health Support Group.
Connect
Well , welcome to my world! My Lp(a) is 584 mol/L- Most of the people I have encountered with elevated Lp(a) were below 300-
I am also on Repatha and my Lp(a) has gone down to 369-not great but better than being in the 99th percentile! I am also on Rosuvastatin and ezetimibe. My LDL has to be below 1mmol/L (metric)
Conversion: LDL cholesterol: 1 mmol/L = 38.67 mg/dL
Keep me informed!
@tamig
I'm currently taking 20 mg of Crestor. I was on Repatha for a while, but my new insurance stopped covering it. While I was taking it, my Lp(a) only dropped to about 535, so not a huge change. I also developed swollen glands and lymph nodes, which may have been a side effect.
I've now had my second Leqvio injection. So far I haven't had any side effects, but I haven't rechecked my Lp(a) yet.
One thing I'd suggest is checking your ApoB level as well. That's another very important number to follow, and it's something my doctor pays close attention to.
I've also changed my eating habits quite a bit. While a healthy diet is important, it really doesn't seem to have much effect on Lp(a), since Lp(a) is mostly genetic.
For what it's worth, my mother is 88, has an Lp(a) around 435, and has never had any heart problems. So high Lp(a) doesn't necessarily mean you'll have cardiovascular disease, but it's definitely something worth monitoring and managing with your doctor.