Cholangiocarcinoma - Bile Duct Cancer - anyone else dealing with this?

I have no idea what to expect in the near future, all we know is it is BAD! stage 3.

Mine is stage 4 and I have been living with it quite well for 27 months. Read my post above about my journey. I had a bad spell Jan-March this year that was the result of reaction to chemo as well as other infections, but other than that, I have basically been living with it, receiving treatment and living life. I know it won't last, but I'm doing better than what was initially suggested to me about the progression of this disease. So tell him to hang in there - I hope his progression is as slow as mine! Kris

Hello Kris @krishh

Thanks for your encouraging words!

Teresa

Hi My husband was just diagnosed with stage 4. He just started his first chemo this Monday. we don't know about surgery yet. Were you able to have surgery to remove the tumor?
Mary

Hi Mary,
I had successful surgery in May of 2015, before starting chemo. Unfortunately in my case, the cancer had already spread to lymph nodes. I've been doing quite well and maintaining fairly good for 27 months. I recently have started experiencing more discomfort in my abdomen and chest. Scans were done earlier this week and I will get results this afternoon. I hope the chemo will shrink your husband's tumor and that he is able to have successful surgery. Keep us posted and best of luck - keep a positive attitude and pray if you are so inclined. I believe both of those things have helped me along my way. Good luck - Kris

Thank you Kris. This helps. The cancer in not in the lymph nodes. I will also keep you in my prayers.
Mary

Hello. How is your chemo treatment going?

Hi Kris. My mom was just diagnosed with CC stage 4. Where did you have your surgery?

Hi -I had my surgery at Mayo in Rochester, MN in May of 2015. I only live about 75 miles from Rochester. My diagnoses is stage 4 also, and I am currently doing quite well. Just saw my oncologist yesterday. Will have scans again in March to see if this chemo is still working. Feel free to reach out if you or your Mom have any questions and I will do my best to answer! Good luck ~

Hello. Great to hear. I would like to ask you questions. Can you call me or I can call you?