1. < Neuropathy
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I am new here and just recently found out I have neuropathy.

Posted by granny73 @granny73, Jun 10 12:17pm

How do you deal with unpredictable neuropathy pain? I don’t have any meds for it yet. It hits my feet and calves of my legs.

Interested in more discussions like this? Go to the Neuropathy Support Group.

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granny73 | @granny73 | Jun 14 2:09pm

I’ve done a little reading about retraining the brain and I don’t understand. Is it just focusing more something else so you forget the PN pain?

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granny73 | @granny73 | Jun 14 2:37pm

No, don’t know the cause of my PN. But, I use hempvana for nerve pain and capcaisin. They help. I’m walking more-different routes. We will see.

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granny73 | @granny73 | Jun 14 4:00pm
In reply to @arcuri24 "@granny73 Yes, I was lucky until I had the shin shave biopsy where the dermatologist must..." + (show)
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@granny73
Yes, I was lucky until I had the shin shave biopsy where the dermatologist must have damaged peripheral nerves in my shin. The shin is one of the hardest places on the body to heal as there is not much fat there and it is not so near the heart so circulation of blood can be an issue. I am sorry that your neuropathy hurts. I have heard of hempvana--saw ads on Tv but have not tried it. For my shin I used Wise Men Healing Balm for nerve pain and now my neurologist has prescribed Lidocaine 5% Rx patch which I put over the wound site and it numbs out the pain. With celiac disease my brain interprets pain as being more pronounced. Have you found out what is causing your neuropathy? They say that it can be better treated once you know the cause.

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@arcuri24 I have tried Hempvana for nerve pain and Capzasin-HP. I’m liking the Capzasin-HP better. My toes feel almost normal.

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deanhobart | @deanhobart | Jun 14 4:35pm
In reply to @arcuri24 "@deanhobart In a way that is what my lidocaine pain patch is doing--it creates a numbing..." + (show)
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@deanhobart

In a way that is what my lidocaine pain patch is doing--it creates a numbing sensation and the pain sensation is greatly reduced. Maybe I am getting better as the pain would radiate down my shin toward my ankle in past months but does not do so anymore. I am also able to avoid the heel burning pain I was getting by staying in highly cushioned sneakers and not doing too many heel raises. You are lucky to have access to a pool. In NYC it is mostly a concrete jungle and very very warm right now. I do not get numbness in feet , I am mostly getting tingling and the PN varies for many reasons like diet, exercise, stress, environment etc. Like the shin healing, it may take several years of being on a gluten free diet to reduce sensations of neuropathy. I am always reading food labels these days and cooking my own meals. Thanks for letting me know about the power of the brain in dealing with our nerves. Happy swimming!

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@arcuri24 I used to live on West End at UWS and work in Midtown East. A number of gyms have pools. I know the Westside ymca has pool aerobic classes and open swimming. Chelsea Piers has a great one. I used the one at Peninsula Hotel near work, as they also let me use the one in Chicago . The city has public pools all around.

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arcuri24 | @arcuri24 | Jun 14 5:44pm
In reply to @granny73 "@arcuri24 I have tried Hempvana for nerve pain and Capzasin-HP. I’m liking the Capzasin-HP better. My..." + (show)
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@arcuri24 I have tried Hempvana for nerve pain and Capzasin-HP. I’m liking the Capzasin-HP better. My toes feel almost normal.

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@granny73

I am using Lidocaine patch but my neurologist also mentioned capsaicin for pain relief on my shin. So far the patch is providing some pain relief and I am glad that it does not have side effects like many of the oral medications. I also used Wise Men healing balm which contains frankincense and myrrh. It is nice to feel normal, isn't it? I guess we have to keep trying to see what works.

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arcuri24 | @arcuri24 | Jun 14 5:53pm
In reply to @deanhobart "@arcuri24 I used to live on West End at UWS and work in Midtown East. A..." + (show)
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@arcuri24 I used to live on West End at UWS and work in Midtown East. A number of gyms have pools. I know the Westside ymca has pool aerobic classes and open swimming. Chelsea Piers has a great one. I used the one at Peninsula Hotel near work, as they also let me use the one in Chicago . The city has public pools all around.

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@deanhobart

Thanks for the info on pools. I live in the borough of Queens so Manhattan pools are not that accessible. A YMCA is one block away but does not have a pool. Some years back I went to a pool in a private community near Junction Blvd but they no longer let public in. I will have to keep investigating pools in my area. There is always the beach but I am not that great a swimmer plus riptides have been strong lately. Plus, I really can't stand too much sun. So far, the lidocaine patch is easing the shin pain so that is a big improvement for me.

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carol1024 | @carol1024 | Jun 15 12:36am

Is it chemo related? Diabetes related? I have neuropathy too and I use this. It's in toes and bottoms of feet. This is the only thing I have found that helps. It's from Dermavitality and they make products for cancer patients. All natural. Oh well it says file too big to post picture but you can Google and go to website. It really works.

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thomasmichael | @thomasmichael | Jun 17 8:31am
In reply to @granny73 "I’ve done a little reading about retraining the brain and I don’t understand. Is it just..." + (show)
Profile picture for granny73 @granny73

I’ve done a little reading about retraining the brain and I don’t understand. Is it just focusing more something else so you forget the PN pain?

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@granny73 Retraining the brain is a complex neuroscientific conversation. But I have used things like meditation to calm my mind during times of stress and anxiety. Millions of people meditate. You might want to learn a little about it. it's not hard to learn but you get better with practice.

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granny73 | @granny73 | Jun 17 4:23pm

Has anyone tried Elon’s salt cure for neuropathy. He’s very good at making $ just like the makers of drugs. Just wondering.

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