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Ethambutol - side effects

Posted by atlantabec @atlantabec, Jan 25, 2025

On day 3 of ethambutol (just starting treatment for first time), and I'm having headaches for first time. I don't get headaches, but it's hard to know what it's from or if it's related. Anyone else experience this?

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mollyfoxalden123 | @mollyfoxalden123 | 2 days ago
In reply to @kypowell11 "I have MAC and I have been prescribed Azythro, Rifampin, and Ethambutol. The dosages seems so..." + (show)
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I have MAC and I have been prescribed Azythro, Rifampin, and Ethambutol. The dosages seems so high, and this is daily (I see others taking this 3 times a week).

Azithromycin - 500mg per day
Ethambutol - 1200mg per day
Rifampin - 600mg per day

Is anyone's treatment amounts similar? So far I am only taking Azythro, I am getting a 2nd opinion tomorrow on this treatment regimen. If anyone has a similar treatment, how did you feel taking all of these on a consistent basis? Still able to work, travel, etc?

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@kypowell11 my doses are the same ..everyday and I started them altogether 2 days ago

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mollyfoxalden123 | @mollyfoxalden123 | 2 days ago

Me …day two of treatment.Also have headaches which I dont get normaly

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texaseve | @texaseve | 1 day ago

The antibiotics bother my head some, however, the humidity on the east coast is what is really making my headaches bad. We have to run AC and a dehumidifier for me. NC was the worst place for my head. I do take migraine meds when necessary. I've been on Ethambutol with the Azith and Rif for a year; so far, so good. Had eyes checked a month ago after a year and only a slight change. The only way I can tolerate them is taking 2 (Rif & Azith) on one day the Ethambutol the next. My MAC is going away.

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dantur | @dantur | 1 day ago

Prendono le stesse dosi dei 3 farmaci tutti i giorni a stomaco vuoto da circa un mese e mezzo. Nessun effetto collaterale importante se non all’inizio qualche crampo all’intestato latino, poi il mio corpo si è abituato. Faccio tutti i controlli per monitorare gli effetti tossici della terapia e per il momento tutto ok. Purtroppo è tropo presto per capire se stanno funzionando. Penso che saprò qualcosa tra un paio di mesi, quando mi faranno ripetere la broncoscopia o la tac. Ho un’infezione importante da Micobacteryum Chimerae.

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