Living with Neuropathy - Welcome to the group

@bustrbrwn22 you’re welcome. I am glad to be of help with any questions. My best to you. Toni

@avmcbellar
Okay, if do you want to help with any questions I got one for you.
I read this but I’m not sure if it’s true. It said when you’re neuropathy changes from all or most of the painful symptoms go away and you get more numbness your Neuropathy is getting worse.
What do you think?
Ever hear the before? Are used to have all the horrendously painful symptoms but they went away and now The numbness has gone all the way up to just passed my waist. I can’t feel my feet at all and keep trying to takeoff my shoes and socks which you’re already off but I can’t tell my lower legs are pretty bad too and the numbness eases the farther up it goes, at least for now.
Any ideas,
Jake

@jakedduck1. Dang neuropathy! Jake, I'm so sorry you going through that.

Mine was that bad too, when I was on mega-prednisone for 1 1/2 years, from June, 2019 to November, 2020. Numb right up to my waist. Now, it's gone to pain and numbness up to my knees, with numb toes. It isn't too bad during the day, but worse after dinner, really bad in the evening, and most of the night. Hard to get to sleep, and stay asleep. Always get up by 4:00 a.m.

I've been doing trials with carbs, because my neuropathy gets so bad after dinner. That's what it turned out to be! Eureka! I tried to cut most carbs out of my diet and that definitely helped. But, my blood glucose kept plummeting so I kept trying to remedy that. Hopeless though, living in a seniors' residence with set meal choices. Lots of pasta, bread, rice, potatoes. So, I'm back eating carbs and suffering from this dang neuropathy. It helps somewhat to walk so I can't wait for the weather to smarten up! Under all this manure, there must be a PONY somewhere!! Lol

@jakedduck1 Jake, are you going to check things out with your doctor regarding your neuropathy getting so bad? I hope you will. X0 Laurie

@artist01
I don't mind the numbness. So much better than that horrible pain so many years ago.
I fall more because I trip myself but I fall a lot anyway so no big deal.
It's a bother to try and take off my shoes and socks that are already off. But no biggie. I doubt I’ll ever mentioned it to a doctor. Probably nothing they can do anyway.
Take care of yourself,
Jake

@jakedduck1 I know, Jake. We're always told "Sorry, nothing we can do for that". We've all been down that road, that's for sure. But I worry about you.
I read a good research article today about Turmeric and Lichen Planus, which is my latest autoimmune disease diagnosed this week by yet another specialist. No cure known.
Wonder if there's any relationship to my GCA? I'll research that tomorrow.
Prognosis:18 months to forever.
Very painful, difficult to eat, talk, etc.
So depressing. I'm going to give Turmeric capsules a try.
Happy trails to all you good people with the good weather. Ours is coming too!!

PS. Just to clarify - I don't mean to imply that carbs CAUSE neuropathy, if that's how my post sounds. I only mean that, in my case, carbs seem to make it so much worse. When I re-read my post, I sound like a bit of a wing nut the way I've expressed the idea. Lol. I really need to get out walking in the fresh air!!

@artist01
Thank you for your concern but I'm doing great.
There were many difficult year's but thankfully those times are gone.
The orthopedic doctor recommended turmeric for my Mom's knee pain. Her pain disappeared. She took 2,000mg a day per doctors orders.
I hope it helps you as much as it helped my mom.
Jake

@jakedduck1 Thankyou for your encouraging story about your Mom's use of Turmeric for her knee pain. I'm sure going to give it a try. The specialist had prescribed a corticosteroid, which the pharmaceutical information warned that it should not be used on mouth, nose, etc., and only externally. Yikes. I was afraid to use it.
I'm happy to hear that you're doing well these days, although I think you are very stoic and put forth a brave and positive front for us, Jake. Good on ya', pardner!
Keep well. Happy trails. Laur

I'm an old subscriber of our Mayo Clinic. Iam a neurological patient. I had
CSVD with nerve blocks few years back. Now I'm having problems with day
time fatigue along with pain in hands & legs. Kicking & falling with Memory
issues also. I suspect that I m having MS.but in India nobody cares
Multiple Sceloris. Even neurologiists also give less importance. What
medicines I can take? I have been taking Ecosprin & Lipitab along with BP
tablets. Kindly suggest.